Information

General Information
Treatment
Managing Side Effects
Finding a Doctor
Clinical Trials
Genetics
Complementary, Alternative, and Dietary Therapies

Resources for General Information About Ovarian Cancer

American Cancer Society
http://www.cancer.org/Cancer/index
The American Cancer Society provides general information on cancer, and offers a range of advocacy and educational programs.

Bright Pink
http://www.bebrightpink.org/
Bright Pink provides education and support for women who are at a high risk for breast and ovarian cancer.

Cancer Dictionary: National Cancer Institute
https://www.cancer.gov/publications/dictionaries/cancer-terms
A list of all words, types of treatment, and cancer related information listed alphabetically.

Cancer.net
http://www.cancer.net/portal/site/patient
This site features cancer information provided by the American Society of Clinical Oncology, including links to find an oncologist and information on cancer types.

Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/cancer/ovarian/
The CDC collects and publishes data on ovarian cancer in the United States, as well as shares basic information about the disease.

Foundation for Women’s Cancer
http://www.foundationforwomenscancer.org
The Foundation for Women’s Cancer provides information and resources on all gynecologic cancers, and offers free educational courses for survivors in locations throughout the United States.

Get Palliative Care
https://getpalliativecare.org/
Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment.

Health Finder
http://www.healthfinder.gov/
Healthfinder.gov collects resources on a wide range of health topics selected from approximately 1,400 government and nonprofit organizations. The site provides information on a wide range of health topics, including ovarian cancer.

Inside Knowledge
http://www.cdc.gov/cancer/knowledge/
The Inside Knowledge campaign is a project run by the CDC to raise awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal and vulvar. OCRA has taken a leading role in advocating for federal funding for this project.

Leaf411
Leaf411.org
FREE, reliable cannabis education and directional support, please connect with Leaf411. You can call and speak live to a cannabis trained nurse at 844-Leaf411

Medline
https://medlineplus.gov/ovariancancer.html
Clearinghouse for information and links that describes diagnosis and treatment options.

National Cancer Institute (NCI)
http://www.cancer.gov/cancertopics/types/ovarian
The NCI provides information about ovarian cancer on its website, as well as funding and conducting cancer research.

National Coalition for Cancer Survivorship (NCCN)
https://www.canceradvocacy.org/
National Coalition for Cancer Survivorship (NCCN) advocates for quality access and care for cancer patients. NCCN regularly releases a set of guidelines for the medical community on cancer care and survivorship.

Information About Ovarian Cancer Treatment

Navigating and understanding treatment options are critical for an ovarian cancer patient’s survival. All treatment decisions should be made by a patient in consultation with her medical professional. Read more about ovarian cancer treatment.

Managing Side Effects

Managing Hair Loss

American Cancer Society: Look Good Feel Better
https://www.cancer.org/treatment/support-programs-and-services/look-good-feel-better.html
Look Good Feel Better offers free workshops to women with cancer who are undergoing chemotherapy, radiation or other forms of treatment. Led by beauty professionals, the workshops help women learn to look and feel their best while undergoing treatment. This program is available at many hospitals nationwide.

Cooling Caps to Reduce Hair Loss – American Cancer Society
https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/hair-loss/cold-caps.html
Information from the American Cancer Society on how the use of cooling caps may reduce chemotherapy-induced hair loss.

Head Covers
https://www.headcovers.com/resources/hair-loss/chemo-hair-loss/
Provides overview of chemotherapy and hair loss. Offers head-covers and hats for sale.

Managing Neuropathy and Lymphedema

Foundation for Peripheral Neuropathy
https://www.foundationforpn.org/
The Foundation for Peripheral Neuropathy works to educate the public and health care professionals, and provide state-of-the-art treatment for patients with peripheral neuropathy—a common side effect of ovarian cancer treatment.

National Lymphedema Network
http://www.lymphnet.org/
Many women with ovarian cancer experience lymphedema, or swelling of the limbs, as a side effect of cancer treatment. The National Lymphedema Network provides information and resources related to this condition.

Managing Menopause and Sexual health

American Cancer Society: Sex and the Woman with Cancer
https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/fertility-and-sexual-side-effects/sexuality-for-women-with-cancer.html
The American Cancer Society has some helpful information on cancer, sex and sexuality and how to cope with changes due to treatment.

LiveStrong Fertility Program
https://www.livestrong.org/we-can-help/livestrong-fertility
In 2009, LiveStrong acquired Fertile Hope and created LiveStrong Fertility. This program can help you understand the risks of cancer treatment on fertility and provides a fertility discount program to eligible women.

OncoFertility Consortium at Northwestern
http://oncofertility.northwestern.edu/for-patients
The OncoFertility Consortium is an initiative out of Northwestern University in Illinois that studies the impact of cancer on fertility. This web site provides information and resources on the impact cancer has on fertility in young adults.

Foundation for Women’s Cancer: Renewing Intimacy and Sexuality after Gynecologic Cancer
https://www.foundationforwomenscancer.org/wp-content/uploads/Sexuality-Brochure_Final.pdf
This is a downloadable brochure from the Foundation for Women’s Cancer that addresses the common concern of sexual changes and cancer.

The Scientific Network on Female Sexual Health and Cancer
http://www.cancersexnetwork.org/
The Network is comprised of physicians, researchers, and healthcare providers dedicated to ensuring women have “timely access to evidence-based education and care to promote sexual well-being and optimize sexual outcomes.” This website has a resource list of material for women as well as search engine to find a physician within their network.

WomanLab
http://womanlab.org/
A virtual platform to discuss and learn about women’s sexuality and provides “questions to ask your doctor about sex and cancer.”

Managing Nausea and Vomiting

ChemoCare: Nausea and Vomiting
http://chemocare.com/chemotherapy/side-effects/nausea-vomiting-chemotherapy.aspx
Provides overview on nausea and vomiting from chemotherapy, helpful hints, and medications to speak with your doctor that may help

Get Palliative Care

http://getpalliativecare.org
Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment.

Finding a Doctor

FORCE: Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org/finding_health_care/finding_specialists.html
Information from FORCE (a Community Partner of OCRA) about finding a specialist, learning about clinical trials and finding a genetic counselor.

Society of Gynecologic Oncologists
https://www.sgo.org/seek-a-specialist/
Find health professionals in your area who specialize in gynecologic oncology.

Foundation for Women’s Cancer
http://www.foundationforwomenscancer.org/find-a-gynecologic-oncologist/
Search for gynecologic oncologists by zip code.

Clinical Trials

Clinical trials are biomedical research studies performed in people that follow a predefined set of procedures to test the safety and effectiveness of new diagnostic tests, treatments and methods to prevent diseases. In cancer research, a clinical trial assesses new ways to diagnose, treat, screen and prevent cancer. Many medical advances we have today, including all the drugs that are currently used to treat ovarian cancer patients, came about as a result of clinical trials. Learn more about clinical trials.

Genetics

American Board of Genetic Counseling
https://www.abgc.net/about-genetic-counseling/find-a-certified-counselor.aspx/
This organization certifies qualified genetic counseling professionals in the United States and Canada, and provides a tool to locate certified genetic counselors in your area.

FORCE: Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org/
FORCE is a national nonprofit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. FORCE is a Community Partner of OCRA.

Myriad: myRisk Hereditary Cancer at mySupport360
http://www.mySupport360.com
This website, run by Myriad Genetics, provides information about hereditary risk and genetic testing

National Cancer Institute: Genetics of Breast and Ovarian Cancer
http://www.cancer.gov/cancertopics/pdq/genetics/breast-and-ovarian/HealthProfessional
Information from the National Cancer Institute (NCI) for women with a family history of breast and ovarian cancer.

The Cancer Genome Atlas (TCGA)
http://cancergenome.nih.gov/
The Cancer Genome Atlas, a project funded by NIH, aims to collect and characterize the genetics of more than 20 tumor types, including ovarian cancer.

Complementary, Alternative, and Dietary Therapies

Acupuncture
https://www.medicalacupuncture.org/
American Academy of Medical Acupuncture is a collaboration of doctors who incorporate acupuncture into their practices. This website has information on the benefits of acupuncture and can help you find a local provider.

American Cancer Society: Complementary and Alternative Therapies
http://www.cancer.org/treatment/treatmentsandsideeffects/complementaryandalternativemedicine/complementary-and-alternative-medicine-landing
Information from the American Cancer Society about complementary and alternative therapies for cancer treatment.

American Cancer Society: Marijuana and Cancer
https://www.cancer.org/treatment/treatments-and-side-effects/complementary-and-alternative-medicine/marijuana-and-cancer.html
Information about cannabis (marijuana) and cancer.

American Institute for Cancer Research (AICR)
http://www.aicr.org/site/PageServer
AICR conducts and disseminates research on the role that diet, exercise and obesity play in cancer prevention. AICR also has resources for cancer patients currently in treatment.

American Music Therapy Association
https://www.musictherapy.org/
American Music Therapy Association provides information on the benefits of music therapy.

Annie Appleseed Project
http://www.annieappleseedproject.org/
The Annie Appleseed Project shares information about complementary and alternative medicine as it relates to cancer treatment.

Cancer.net
https://www.cancer.net/navigating-cancer-care/how-cancer-treated/integrative-medicine/types-complementary-therapies
Provides an overview of the many complementary therapies available

Food for Life Cancer Project
http://www.cancerproject.org/
A program of the Physicians Committee for Responsible Medicine, this project compiles research on diet and cancer, and conducts classes and events about nutrition and cancer.

HeadSpace
http://www.headspace.com
HeadSpace is a service and app with guided meditation and mindfulness exercises.

Health Journeys
https://www.healthjourneys.com/
Health Journeys provides information, video and audio on guided imagery and meditation. Not free service

Meals to Heal
http://meals-to-heal.com/
Home delivery service providing daily meals intended to meet cancer patients’ nutritional needs.

National Cancer Institute: Complementary and Alternative Therapies
https://www.cancer.gov/about-cancer/treatment/cam
Describes options in complementary and alternative therapies.

National Cancer Institute: Cannabis and Cannabinoids
https://www.cancer.gov/about-cancer/treatment/cam/patient/cannabis-pdq
Information about the use of cannabis (marijuana) and effects for patients with cancer.

TherapEase Cuisine
http://www.therapeasecuisine.com
TherapEase offers personalized nutritional recommendations and meal plans for cancer patients.

Yoga U
https://www.yogauonline.com/yoga-for-cancer/navigating-cancer-treatment-how-yoga-can-help
Offers information about Yoga and cancer, online courses (for a fee).