Tag: Advocacy
Action Alert: Tell Congress to Support Full Funding for OCRP
The Ovarian Cancer Research Program (OCRP) is a cutting-edge program housed within the Department of Defense. Despite a history of successful breakthroughs, the program has long been drastically underfunded…
Drawing Upon Strength, Speaking Her Truth | Meet an Advocate Leader
“When something is important to you. Be passionate about it. Stay in their face.” That was the advice Kandis Draw received from her mother over and over as she was growing up…
Action Alert: Tell Your Member of Congress to Co-Sponsor the CLINICAL TREATMENT Act (H.R. 913)
(June 16, 2020) Ovarian cancer is the deadliest gynecologic cancer and fifth leading cause of cancer deaths in women in the United States. There is no effective screening tool and early symptoms are often vague, or altogether absent…
Speaking Out for Those Who Can’t | OCRA Advocate Leader
In 2005, Denise Lobodinski’s sister Renee was diagnosed with ovarian cancer at the age of 47. That same year, their father was diagnosed with prostate cancer. But her father’s doctor told Denise’s mother, “Don’t worry about your husband…
Action Alert: Help Push Forward Treatments in the Time of COVID-19
The novel coronavirus pandemic has impacted the healthcare system on every level. Right now, OCRA is working alongside several cancer advocacy groups to ensure government agencies are aware of COVID-19’s real-life impact on cancer patients…
Supreme Court to Hear Gene Patent Case
The Supreme Court of the United States will hear arguments in a case seeking to invalidate the patents on the BRCA1 and BRCA2 mutations. The patent-holder, Myriad Laboratories, owns patents on the genetic mutations themselves…
NIH to Enforce Public Access Policy
As a condition of receiving public monies for research, the researchers must make available the results of their work. The National Institutes of Health will begin to delay grants to those who do not comply with this policy…