Tag: Advocacy
Everything You Need to Know About Johanna’s Law and Reauthorization
An important victory for the ovarian cancer community came in 2006 when Congress passed Johanna’s Law…
Shaking Things Up from a Little Town in West Virginia | Meet an Advocate Leader
“Don’t settle” This simple two-word mantra is what guides Roxanne Bright – self-proclaimed dog mom, crafter, and 9-year ovarian cancer survivor from West Virginia who is on a mission to use her voice for good…
Action Alert: Tell Congress to Support Full Funding for OCRP
The Ovarian Cancer Research Program (OCRP) is a cutting-edge program housed within the Department of Defense. Despite a history of successful breakthroughs, the program has long been drastically underfunded…
OCRA Supports The CLINICAL TREATMENT Act (H.R. 913)
For many ovarian cancer patients, clinical trials offer a promising avenue for expanding treatment options and extending survival…
Drawing Upon Strength, Speaking Her Truth | Meet an Advocate Leader
“When something is important to you. Be passionate about it. Stay in their face.” That was the advice Kandis Draw received from her mother over and over as she was growing up…
Action Alert: Tell Your Member of Congress to Co-Sponsor the CLINICAL TREATMENT Act (H.R. 913)
(June 16, 2020) Ovarian cancer is the deadliest gynecologic cancer and fifth leading cause of cancer deaths in women in the United States. There is no effective screening tool and early symptoms are often vague, or altogether absent…
Connecting Survivors to the Science | Meet a Research Advocate
To speak with Kimberly Richardson is to feel an instant camaraderie with someone who exhibits both calm and conviction, thoughtfulness and frank talk…
Speaking Out for Those Who Can’t | Meet an Advocate Leader
In 2005, Denise Lobodinski’s sister Renee was diagnosed with ovarian cancer at the age of 47. That same year, their father was diagnosed with prostate cancer. But her father’s doctor told Denise’s mother, “Don’t worry about your husband…
Action Alert: Help Push Forward Treatments in the Time of COVID-19
The novel coronavirus pandemic has impacted the healthcare system on every level. Right now, OCRA is working alongside several cancer advocacy groups to ensure government agencies are aware of COVID-19’s real-life impact on cancer patients…
COVID-19 and Oncology Clinical Trials: An Update
(April 15) The novel coronavirus, COVID-19, has become nearly all consuming. It’s impossible to turn on the news, browse social media, or walk outside without being reminded of the new, albeit temporary, state of the world…
Update on $15 Million Increase Request for OCRP Funding
(April 1, 2019) 156 House Members have joined Reps. DeLauro and Duffy in a call for increased ovarian cancer research funding. Reps…
OCRA Spring Advocacy Day 2019 Actions
(March 20, 2019) Earlier this month, OCRA united advocates from across the country for Spring Advocacy Day on Capitol Hill…