Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT.
There is no standard of treatment as far as I can figure out. There is little research that has gone into treatment as there are so few cases. I am guessing little financial motivation.
The only community I have found is through OCRA.
I have endometrial carcinosarcoma but find this group so supportive that it makes no difference to me that it does not speak to my specific location or type.
I get “hope” from hearing from the long time survivors and those who are fighting the battle with such courage.
I am not much of a shouter unless I know there are people listening.
#RareAware is shining a spotlight on the thousands of patients across the United States who are living with a rare form of ovarian cancer — raising awareness, offering resources and information, and building community for those who may feel both a part *of* and apart *from* the larger conversation about ovarian cancer.