Adult Granulosa Cell Tumor | Fortuna’s #RareAware Story

Fortuna lives in Naples, Italy, and has adult granulosa cell cancer.

What has been your frustration in having a rare form of ovarian cancer?

My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian cancers that are more common, you are the only fish in the big sea, in the cancer’s world.

Where have you found community?

Facebook.

How do you feel both a part of and apart from the greater ovarian cancer community?

I feel happy and sad at the same time. Sad because it is rare and there is not a lot of information about it, not all the doctors know about it, and you don’t know how your future will be. Happy because I found other women and I feel less lonely, and at the same time maybe with my contribution I can help someone else, and make other people more knowledgeable about it.

What gives you hope?

God and science. Progress.

What do you want to shout from the rooftops?

Don’t waste your and our money to go to Mars. Spend this money to save our planet from its destiny. Spend your money to save children, animals, us humans. Spend money for the research, and let’s beat the cancer now and forever.

#RareAware is shining a spotlight on the thousands of patients across the United States who are living with a rare form of ovarian cancer — raising awareness, offering resources and information, and building community for those who may feel both a part *of* and apart *from* the larger conversation about ovarian cancer. Learn more about #RareAware and share your story.

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