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OCRA’s Statement on the Introduction of HR 4412 to Reauthorize Johanna’s Law

OCRA’s Statement on the Introduction of HR 4412 to Reauthorize Johanna’s Law

Your Representative needs to hear from YOU. Please, urge your Representative to cosponsor Johanna’s Law today >> OCRA and the entire ovarian cancer community applaud the action taken on July 13, 2021 by Congresswoman Rosa DeLauro to reauthorize and expand Johanna’s Law. Since it was signed into law in 2007, Johanna’s Law has helped educate … Continued

The Overview: May 2021

The Overview: May 2021

Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE

The Overview: April 2021

The Overview: April 2021

Flowers are blooming all around us, people are beginning to rediscover the things that matter most, and every day, OCRA grantees are making strides in understanding even more about ovarian cancer. Happy (almost!) May! RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE

OCRA Co-Signs Letter to President Biden Supporting HARPA

OCRA Co-Signs Letter to President Biden Supporting HARPA

On April 9, President Biden released his discretionary funding request for fiscal year 2022. Within the request, the President announced the creation of an agency that would take on high-risk, high-reward health research seeking to advance medical technologies. The agency is modeled after the renowned Defense Advanced Research Projects Agency (DARPA) which leverages public investments … Continued

Raising Awareness of a Silent Epidemic | Survivor Stories

Raising Awareness of a Silent Epidemic | Survivor Stories

Janice Murphy is a woman with many passions: sharing her love of the Great American Songbook, living life to the fullest — and making sure healthcare providers know that ovarian cancer may pose a greater risk for older lesbian women. Janice was 62 years old and newly married to a woman she had been committed … Continued

Urgent: Tell Your U.S. Representative to Support a $10 Million Increase to OCRP

Urgent: Tell Your U.S. Representative to Support a $10 Million Increase to OCRP

On Friday, March 19, U.S. House Representatives Grace Meng (D-NY), Brian Fitzpatrick (R-PA), and Norma Torres (D-CA) released a bipartisan “Dear Colleague” letter urging the House Appropriations Defense Subcommittee to fund the Ovarian Cancer Research Program (OCRP) at $45 million for Fiscal Year 2022, an increase of $10 million over last year.  OCRP is the only federally-funded … Continued

Ovarian Cancer Advocates Unite for Spring Advocacy Day

Ovarian Cancer Advocates Unite for Spring Advocacy Day

OCRA’s Spring Advocacy Day, held March 8-9, looked a little bit different this year. For starters, we met online rather than in Washington D.C. But while the natural and obvious reaction to virtual life is to focus on what we’ve lost, we’re choosing to focus on all that we’ve gained from having to move our … Continued

Advocacy in Action: A Year in Ovarian Cancer Policy Progress

Advocacy in Action: A Year in Ovarian Cancer Policy Progress

As we gear up for our first ever virtual Spring Advocacy Day — which will welcome more than 200 participants, double our usual crowd! — we couldn’t help but take a moment and look back. In a year when the world all but shut down, we accomplished quite a lot on a policy level, thanks … Continued

Medicare Patients Pay High Cost for PARP Inhibitors

Medicare Patients Pay High Cost for PARP Inhibitors

PARP inhibitors have proven to be particularly valuable in improving progression-free survival for patients with certain types of ovarian cancer. But unfortunately, these gains come at a high financial cost to many patients, with a recent study showing that Medicare beneficiaries are the hardest hit. A team of researchers from The University of Alabama at … Continued

Letter to President Biden & Leaders of State Public Health Departments: Prioritizing COVID-19 Vaccines for Patients  With Cancer and Survivors of Cancer

Letter to President Biden & Leaders of State Public Health Departments: Prioritizing COVID-19 Vaccines for Patients With Cancer and Survivors of Cancer

February 16, 2021 President Joseph R. Biden, Jr.The White House1600 Pennsylvania Avenue, NWWashington, DC 20500 Dear Mr. President: On behalf of a broad spectrum of organizations, cancer centers, and other institutions that represent laboratory, translational, and clinical researchers; other health care professionals; millions of patients with cancer; and patient advocates, we are writing today to … Continued

The Overview: February 2021

The Overview: February 2021

We have great hope for the year ahead, and much of that is buoyed by what we accomplished, with your help, in 2020. A quick look back at the numbers… Thank you for everything you have done to make this happen. We hope you enjoy reading about what lies ahead. RESEARCH ADVOCACY PATIENT SUPPORT & … Continued

Register Today for Virtual Spring Advocacy Day!

Register Today for Virtual Spring Advocacy Day!

If you’ve ever wanted to join us for Spring Advocacy Day, but couldn’t make it to Capitol Hill, now is your chance!  Every spring, we bring together survivors, caregivers and supporters in Washington, D.C., to advocate for issues important to the ovarian cancer community. It’s a rare opportunity to communicate directly with your Members of … Continued

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