Jessica lives in Manassas, Virginia, and was diagnosed with Sertoli-Leydig cell ovarian cancer.
What has been your frustration in having a rare form of ovarian cancer?
It took over 8 years to get diagnosed. Doctor after doctor dismissed me and categorized me into having PCOS. My endocrinologist knew something was wrong but couldn’t figure it out so she sent me to NIH. NIH found my tumor in 4 months.
Where have you found community?
Having sertoli-leydig cell ovarian cancer is rare and it is hard to find people who have been in my shoes. I get comfort in talking to other survivors of cancer, not just ovarian.
What gives you hope?
Seeing so many strong women beat this cancer and seeing new treatments and awareness all the time.
What do you want to shout from the rooftops?
Be your own advocate and don’t give up. Listen to your body and find someone who will believe in you!
#RareAware is shining a spotlight on the thousands of patients across the United States who are living with a rare form of ovarian cancer — raising awareness, offering resources and information, and building community for those who may feel both a part *of* and apart *from* the larger conversation about ovarian cancer. Learn more about #RareAware and share your story.