(April 15) The novel coronavirus, COVID-19, has become nearly all consuming. It’s impossible to turn on the news, browse social media, or walk outside without being reminded of the new, albeit temporary, state of the world. In an effort to control, slow, and hopefully stop the spread of COVID-19, drastic public health measures have been … Continued
(April 1, 2019) 156 House Members have joined Reps. DeLauro and Duffy in a call for increased ovarian cancer research funding. Reps. Rosa DeLauro (D-CT) and Sean Duffy (R-WI) – co-chairs of the Congressional Ovarian Cancer Caucus – today delivered a “Dear Colleague” letter to the House Defense Appropriations Subcommittee requesting a $15 million increase in … Continued
(March 20, 2019) Earlier this month, OCRA united advocates from across the country for Spring Advocacy Day on Capitol Hill. Together, this passionate group of survivors, caregivers and supporters used their collective voice to advocate for increased funding for ovarian cancer research and education. Learn more about our asks for Ovarian Cancer Research Program (OCRP) … Continued
(March 19, 2019) Congress is considering a $15 million increase for OCRP funding. Urge YOUR Representative to sign the letter to help push this funding through. Deadline is March 25th! Tell Congress to Increase OCRP Funding The Ovarian Cancer Research Program (OCRP) is a cutting-edge program housed within the Department of Defense and despite a … Continued
(March 12, 2019) “The President’s proposed FY2020 budget released by the White House on Monday seeks to cut medical research funding at the National Cancer Institute (NCI) by 15 percent – almost $900 million dollars compared to FY2019 funding. The budget also slashes the Centers for Disease Control’s (CDC) Chronic Disease Program by almost 20 … Continued
Be a voice for the ovarian cancer community. Update: The deadline to apply for our 2019 Advocate Leader program has now passed. (August 28, 2018) Registration is now open for our 2019 Advocate Leader program. Apply today to join our diverse community of survivors, caregivers and activists from across the country using their voices to effect … Continued
Name: Sayla H.Hometown: Portland, ORStatus: In treatmentAdvocacy Goal: Oral Parity, Access to Care Sayla was diagnosed earlier last year and is currently in treatment. She’s determined to use her experience to help other women, and is empowered to advocate for women fighting ovarian cancer through OCRA’s Advocate Leader program. Tell us about your ovarian cancer … Continued
Name: Elise D.Hometown: Durham, NHStatus: 13-Year SurvivorAdvocacy Goal: Access to Care Elise feels lucky that she was diagnosed with early-stage ovarian cancer, and being an Advocate Leader allows her to fight for women who may not be able to fight for themselves. Tell us about your ovarian cancer journey. In the summer of 2005, I … Continued
The White House has released a proposed budget for FY2018 that makes drastic cuts to the budgets for the National Institute of Health (NIH) and Centers for Disease Control and Prevention (CDC). These cuts would reduce the NIH budget by 20% and threaten to halt breakthrough medical research advancements and delay life-saving cures. The proposed … Continued
Later this week, we’ll be sending out a request for you to take Action to help protect ovarian cancer research funding at the Department of Defense. The Ovarian Cancer Research Program (OCRP) is part of the Congressionally Directed Medical Research Program in the Department of Defense (DoD), and funds innovative and cutting edge ovarian cancer … Continued
The Supreme Court of the United States will hear arguments in a case seeking to invalidate the patents on the BRCA1 and BRCA2 mutations. The patent-holder, Myriad Laboratories, owns patents on the genetic mutations themselves. The Alliance has joined the suit, led by the ACLU. Read the ACLU’s press release here
As a condition of receiving public monies for research, the researchers must make available the results of their work. The National Institutes of Health will begin to delay grants to those who do not comply with this policy. When a bill was introduced to cripple this policy, the Alliance worked with the patient advocacy community … Continued
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