This section of our website is dedicated to you. It is intended to help you on this journey.
Need to talk with someone? We are available to answer your questions. You can call OCRA at 866-399-6262 or email us for further assistance.
A Checklist to Guide Your First Steps:
- Find a gynecologic oncologist to help treat you
- Ask your doctor about enrolling in a clinical trial
- Find support online and in your community
Many studies conducted over the past decade have shown that an ovarian cancer patient’s chance of survival is significantly improved when a gynecologic oncologist performs her surgery. Some studies showed survival rates as much as 50 percent greater, compared to women whose surgeries were done by surgeons less experienced in the techniques used to treat ovarian cancer. To find a gynecologic oncologist in your area:
- Ask your primary care doctor or gynecologist for a referral
- Visit the Foundation for Women’s Cancer website to search for a gynecologic oncologist near you
- Call the nearest hospital or community-based cancer center
- If you have access to an NCI-designated cancer center, go there. An NCI-designated cancer center can make a difference.
- Visit the National Comprehensive Cancer Network’s Patient Resource page to view the NCCN Guidelines for Patients with Ovarian Cancer to help guide you to get the best ovarian cancer treatment.
- Get a second opinion if needed: Even doctors sometimes feel they need to get a second opinion on the results of the pathology report after surgery. So you should feel you have the right to get a second opinion, if you want one.
- Here are some recommended questions to ask your doctor about ovarian cancer, surgery and treatment.
Clinical trials are available for women in every stage of treatment—before, during and after. Our website can guide you through some of the common questions about clinical trials. If you want to look for a clinical trial, we offer a free matching service for women with ovarian cancer or you can search for information from the National Institutes of Health.
OCRA offers many options for support and information, including our Patient Support Line, Woman to Woman peer mentor program, weekly zoom support group Staying Connected, online community through Inspire.com, and local program connections through our network of Community Partners. Our online community though Inspire will connect you to more than 64,000 people who have been touched by ovarian cancer. You can also search our list of Community Partner groups throughout the country, many of whom offer in-person support.
1:1 support: Our Oncology Social Worker is available to help you navigate information about your diagnosis, treatment, clinical trials, resources, and connect you with a Woman to Woman mentor Monday – Friday. Call 212-268-1002.
Connecting the Community: Participate in our Staying Connected online support groups for gynecologic cancer patients and survivors. The groups are a great opportunity to meet with new friends and talk about what’s on our minds. Registration is necessary, so please sign up early. Sponsorship support provided by Clovis Oncology, Inc and GlaxoSmithKline.
Access to critical information: Uniting for Hope: Ovarian Cancer National Conference brings the community together to share information and build lasting connections. Over the course of each year, OCRA also offers free educational webinars on topics related to ovarian cancer and ovarian cancer research. You may join or listen to replays of these critical updates.
Finally, remember to call or email us if you need assistance.