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Black Health Matters Black Health Matters provides information about health and well-being from a service-oriented perspective–with lots of upbeat, positive solutions and tips, including Health, Beauty, Mind & Body, Nutrition & Fitness.
Black Women’s Health Imperative Targets the most pressing health issues that affect Black women and girls in the U.S. through investments in evidence-based strategies, programs, and advocacy outreach on health policies.
Cancer.net This site features cancer information provided by the American Society of Clinical Oncology, including links to find an oncologist and information on cancer types.
Foundation for Women’s Cancer The Foundation for Women’s Cancer provides information and resources on all gynecologic cancers and offers free educational courses for survivors in locations throughout the United States.
National Comprehensive Cancer Network NCCN is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education.
Health Finder Healthfinder.gov collects resources on a wide range of health topics selected from approximately 1,400 government and nonprofit organizations. The site provides information on a wide range of health topics, including ovarian cancer.
HPV Alliance HPV Alliance provides information about how to prevent and treat Human Papillomavirus, along with its link to some cancer diagnosis.
Inside Knowledge The Inside Knowledge campaign is a project run by the CDC to raise awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal and vulvar. OCRA has taken a leading role in advocating for federal funding for this project.
Latinas Contra Cancer Latinas Contra Cancer exists to create equitable and just access to health and the healthcare system for the Latino community around issues of cancer and cancer prevention. Though based in California, this organization offers virtual resources in Spanish and English.
Medline Clearinghouse for information and links that describes diagnosis and treatment options.
National Cancer Institute The NCI provides information about ovarian cancer on its website, as well as funding and conducting cancer research.
National LGBT Cancer Network The National LGBT Cancer Network is a nonprofit organization that addresses the needs of lesbian, gay, bisexual, and transgender cancer survivors and those at risk. Founded and directed by members of the LGBT community. They host regular cancer support groups for LGBT individuals.
National LGBT Cancer Project The first lesbian, gay, bisexual and transgender cancer support and advocacy nonprofit in the U.S. They run Out With Cancer, an online support community, and offer resources on navigating LGBT cancer survivorship and caregiving.
SAGE This organization offers advocacy and services for LGBTQ+ Elders. Though not cancer-specific, it is a great resource on health and aging in the LGBTQ+ community.
Finding a Doctor
FORCE: Facing Our Risk of Cancer Empowered Information from FORCE (a Community Partner of OCRA) about finding a specialist, learning about clinical trials and finding a genetic counselor.
National Cancer Institute: Designated Cancer Centers An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in 36 states.
National Cancer Institute: Designated Cancer Centers An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in 36 states.
National Cancer Institute: Immunotherapy to Treat Cancer Provides an overview of immunotherapy as well as links for Articles on: Targeted Therapy to Treat Cancer, Biological Therapies for Cancer, NCI’s Role in Immunotherapy Research, and CAR T Cells: Engineering Patients’ Immune Cells to Treat Their Cancers.
OCRA Clinical Trial Navigation Service (careboxhealth.com) OCRA offers a gynecologic cancer clinical trial navigator that can personalize a list of available clinical trials for you to explore and discuss with your treatment team. This service is available by phone or online.
Cancer.net: Finding a Clinical Trial Provides a listing of clinical trial search navigators, pharmaceutical companies, and patient advocate foundations.
Lazarex Cancer Foundation Lazarex Cancer Foundationassists cancer patients with finding clinical trial options. Once accepted into a trial, Lazarex will reimburse the travel expenses for you and a loved one to get to your clinical trial treatments. The income qualification is 7x HHS Poverty Level.
National Cancer Institute: Clinical Trials An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in the US.
National Institute of Health ClinicalTrials.gov is offered by the U.S. National Library of Medicine and lists national and international research studies.
Genetics
American Board of Genetic Counseling This organization certifies qualified genetic counseling professionals in the United States and Canada, and provides a tool to locate certified genetic counselors in your area.
FORCE: Facing Our Risk of Cancer Empowered FORCE is a national nonprofit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. FORCE is a Community Partner of OCRA.
The Cancer Genome Atlas (TCGA) The Cancer Genome Atlas, a project funded by NIH, aims to collect and characterize the genetics of more than 20 tumor types, including ovarian cancer.
Managing Side Effects
Hair Loss
Cooling Caps to Reduce Hair Loss Information from Memorial Sloan Kettering on how the use of cooling caps may reduce chemotherapy-induced hair loss. Provides resources to purchase cold caps.
EBeauty EBeauty offers a Wig Exchange Program for those undergoing cancer treatment from women who have completed cancer treatment. The wigs are refurbished and then distributed free of charge to women undergoing treatment.
HairtoStay Information and financial assistance around scalp cooling and cooling caps.
Headcovers Unlimited Provides overview of chemotherapy and hair loss. Offers head-covers and hats for sale.
Look Good Feel Better Look Good Feel Better offers free workshops to women with cancer who are undergoing chemotherapy, radiation or other forms of treatment. Led by beauty professionals, the workshops help women learn to look and feel their best while undergoing treatment.
National Wigs for Cancer Society NWFCS works directly with your insurance or our network of independent fundraising campaigns and donors to ensure you receive your high quality, 100% human hair wig at little to no cost.
Sharsheret Through Sharsheret’s Best Face Forward 2.0 program, eligible patients with ovarian cancer diagnoses (or those considered at high risk of developing ovarian cancer) may qualify for financial assistance for wigs (cranial hair prosthesis), cold caps (scalp cooling treatment), and/or tattooing of the eyebrows (microblading).
Managing Neuropathy and Lymphedema
Connie Cares Connie Cares provides compression pumps to individuals diagnosed with lymphedema at no cost.
Foundation for Peripheral Neuropathy The Foundation for Peripheral Neuropathy works to educate the public and health care professionals, and provide state-of-the-art treatment for patients with peripheral neuropathy—a common side effect of ovarian cancer treatment.
National Lymphedema Network Many women with ovarian cancer experience lymphedema, or swelling of the limbs, as a side effect of cancer treatment. The National Lymphedema Network provides information and resources related to this condition.
Nausea and Vomiting
ChemoCare: Nausea and Vomiting Provides overview on nausea and vomiting from chemotherapy, helpful hints, and medications to speak with your doctor about.
Palliative Care
Caring Connections: NHPCO A program of the National Hospice and Palliative Care Organization, providing information and support to patients nearing end-of-life, advance directives, caregivers and those who are grieving the loss of a loved one.
Get Palliative Care Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment.
Enhancing Your Care
Integrative Therapies
American Academy of Medical Acupuncture American Academy of Medical Acupuncture is a collaboration of doctors who incorporate acupuncture into their practices. This website has information on the benefits of acupuncture and can help you find a local provider.
Calm Meditation app. First seven days free, then there is a subscription fee.
Complementary and Alternative Medicine Information from Johns Hopkins Medical on complementary and alternative medicines for people with ovarian cancer.
Cancer.net Provides an overview of the many complementary therapies available.
Insight Timer Free app for sleep, anxiety and stress.
Leaf411 FREE, reliable cannabis education and directional support, please connect with Leaf411. You can call and speak live to a cannabis trained nurse at 844-Leaf411.
LIBERATE Meditations and talks designed for BIPOC communities. Offers both free and premium subscription.
Unite for Her Offers wellness resources and integrative therapies for those living with ovarian cancer.
Untireme App that addresses cancer fatigue and strategies for well-being.
Diet and Exercise
American Institute for Cancer Research (AICR) AICR conducts and disseminates research on the role that diet, exercise and obesity play in cancer prevention. AICR also has resources for cancer patients currently in treatment.
Culinary Care We’re on a mission to nourish cancer patients to recovery by delivering a lifeline to good food and human connection.
Exercise with MSK Exercise videos created by Memorial Sloan Kettering.
Food for Life Cancer Project A program of the Physicians Committee for Responsible Medicine, this project compiles research on diet and cancer, and conducts classes and events about nutrition and cancer.
Ina™: The Intelligent Nutrition Assistant Developed by CancerCare and Savor Health, Ina™ (the Intelligent Nutrition Assistant) is a safe, free, HIPAA-compliant solution offering personalized, evidence-based nutrition support to people with cancer.
Mom’s Meals Menus that are designed by dietitians and professional chefs, tailored to health conditions. Associated fee.
Tai Chi Tai chi is a traditional Chinese self-defense practice that can potentially help both your physical and emotional well-being.
TherapEase Cuisine TherapEase offers personalized nutritional recommendations and meal plans for cancer patients.