Managing Your Diagnosis Resources

The American Cancer Society provides general information on cancer and offers a range of advocacy and educational programs.

This organization brings together native communities in the fight against cancer.

Targets the most pressing health issues that affect Black women and girls in the U.S. through investments in evidence-based strategies, programs, and advocacy outreach on health policies.

This site features cancer information provided by the American Society of Clinical Oncology, including links to find an oncologist and information on cancer types.

The Foundation for Women’s Cancer provides information and resources on all gynecologic cancers and offers free educational courses for survivors in locations throughout the United States.

NCCN is a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education.

Healthfinder.gov collects resources on a wide range of health topics selected from approximately 1,400 government and nonprofit organizations. The site provides information on a wide range of health topics, including ovarian cancer.

HPV Alliance provides information about how to prevent and treat Human Papillomavirus, along with its link to some cancer diagnosis.

The Inside Knowledge campaign is a project run by the CDC to raise awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal and vulvar. OCRA has taken a leading role in advocating for federal funding for this project.

Latinas Contra Cancer exists to create equitable and just access to health and the healthcare system for the Latino community around issues of cancer and cancer prevention. Though based in California, this organization offers virtual resources in Spanish and English.

Clearinghouse for information and links that describes diagnosis and treatment options.

The NCI provides information about ovarian cancer on its website, as well as funding and conducting cancer research.

The National LGBT Cancer Network is a nonprofit organization that addresses the needs of lesbian, gay, bisexual, and transgender cancer survivors and those at risk. Founded and directed by members of the LGBT community. They host regular cancer support groups for LGBT individuals.

The first lesbian, gay, bisexual and transgender cancer support and advocacy nonprofit in the U.S. They run Out With Cancer, an online support community, and offer resources on navigating LGBT cancer survivorship and caregiving.

This organization offers advocacy and services for LGBTQ+ Elders. Though not cancer-specific, it is a great resource on health and aging in the LGBTQ+ community.

Locate gynecologic oncologists, specialists, and treatment centers in your area.

Information from FORCE (a Community Partner of OCRA) about finding a specialist, learning about clinical trials and finding a genetic counselor.

Search for gynecologic oncologists by zip code.

An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in 36 states.

Find health professionals in your area who specialize in gynecologic oncology.

An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in 36 states.

Chemocare provides information on various chemo drugs and side effects.

Provides an overview of immunotherapy as well as links for Articles on: Targeted Therapy to Treat Cancer, Biological Therapies for Cancer, NCI’s Role in Immunotherapy Research, and CAR T Cells: Engineering Patients’ Immune Cells to Treat Their Cancers.

OCRA sponsors NCCN’s overviews of treatment options for ovarian cancer and cervical cancer NCCN also provides an overview of uterine cancer as well as several other cancer types. The NCCN guides are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.

Provides an overview of intraperitoneal and hyperthermia intraperitoneal chemotherapy.

OCRA offers a gynecologic cancer clinical trial navigator that can personalize a list of available clinical trials for you to explore and discuss with your treatment team. This service is available by phone or online.

Offers clinical trial search careboxhealth search tool.

Provides a listing of clinical trial search navigators, pharmaceutical companies, and patient advocate foundations.

Offers information on clinical research and will send you list of clinical trials.

Lazarex Cancer Foundation assists cancer patients with finding clinical trial options. Once accepted into a trial, Lazarex will reimburse the travel expenses for you and a loved one to get to your clinical trial treatments. The income qualification is 7x HHS Poverty Level.

An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population-based research. There are 71 Designated Cancer Centers in the US.

ClinicalTrials.gov is offered by the U.S. National Library of Medicine and lists national and international research studies.

FORCE is a national nonprofit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. FORCE is a Community Partner of OCRA.

Provides information about hereditary risk and genetic testing.

Information from the National Cancer Institute (NCI) for women with a family history of breast and ovarian cancer.

The Cancer Genome Atlas, a project funded by NIH, aims to collect and characterize the genetics of more than 20 tumor types, including ovarian cancer.

Information from Memorial Sloan Kettering on how the use of cooling caps may reduce chemotherapy-induced hair loss. Provides resources to purchase cold caps.

EBeauty offers a Wig Exchange Program for those undergoing cancer treatment from women who have completed cancer treatment. The wigs are refurbished and then distributed free of charge to women undergoing treatment.

Information and financial assistance around scalp cooling and cooling caps.

Provides overview of chemotherapy and hair loss. Offers head-covers and hats for sale.

Look Good Feel Better offers free workshops to women with cancer who are undergoing chemotherapy, radiation or other forms of treatment. Led by beauty professionals, the workshops help women learn to look and feel their best while undergoing treatment.

NWFCS works directly with your insurance or our network of independent fundraising campaigns and donors to ensure you receive your high quality, 100% human hair wig at little to no cost.

Through Sharsheret’s Best Face Forward 2.0 program, eligible patients with ovarian cancer diagnoses (or those considered at high risk of developing ovarian cancer) may qualify for financial assistance for wigs (cranial hair prosthesis), cold caps (scalp cooling treatment), and/or tattooing of the eyebrows (microblading).

Connie Cares provides compression pumps to individuals diagnosed with lymphedema at no cost.

The Foundation for Peripheral Neuropathy works to educate the public and health care professionals, and provide state-of-the-art treatment for patients with peripheral neuropathy—a common side effect of ovarian cancer treatment.

Many women with ovarian cancer experience lymphedema, or swelling of the limbs, as a side effect of cancer treatment. The National Lymphedema Network provides information and resources related to this condition.

Provides overview on nausea and vomiting from chemotherapy, helpful hints, and medications to speak with your doctor about.

A program of the National Hospice and Palliative Care Organization, providing information and support to patients nearing end-of-life, advance directives, caregivers and those who are grieving the loss of a loved one.

Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment.

American Academy of Medical Acupuncture is a collaboration of doctors who incorporate acupuncture into their practices. This website has information on the benefits of acupuncture and can help you find a local provider.

Information about cannabis (marijuana) and cancer.

American Music Therapy Association provides information on the benefits of music therapy.

Meditation app. First seven days free, then there is a subscription fee.

Provides an overview of the many complementary therapies available.

Offers multiple different kinds of guided meditation for a fee.

Free app for sleep, anxiety and stress.

FREE, reliable cannabis education and directional support, please connect with Leaf411. You can call and speak live to a cannabis trained nurse at 844-Leaf411.

Information about the use of cannabis (marijuana) and effects for patients with cancer.

Describes options in complementary and alternative therapies.

Free mindfulness meditation app from UCLA.

Offers wellness resources and integrative therapies for those living with ovarian cancer.

AICR conducts and disseminates research on the role that diet, exercise and obesity play in cancer prevention. AICR also has resources for cancer patients currently in treatment.

We’re on a mission to nourish cancer patients to recovery by delivering a lifeline to good food and human connection.

Exercise videos created by Memorial Sloan Kettering.

A program of the Physicians Committee for Responsible Medicine, this project compiles research on diet and cancer, and conducts classes and events about nutrition and cancer.

Developed by CancerCare and Savor Health, Ina (the Intelligent Nutrition Assistant) is a safe, free, HIPAA-compliant solution offering personalized, evidence-based nutrition support to people with cancer.

Menus that are designed by dietitians and professional chefs, tailored to health conditions. Associated fee.

Tai chi is a traditional Chinese self-defense practice that can potentially help both your physical and emotional well-being.

TherapEase offers personalized nutritional recommendations and meal plans for cancer patients.