April lives in Federal Way, Washington, and was diagnosed with Müllerian clear cell carcinoma. What has been your frustration in having a rare form of ovarian cancer? My biggest frustration is finding effective treatments and battling my insurance company to approve treatments. My insurance continues to deny treatments like immunotherapy, calling it investigational because there … Continued
Heather lives in Muskegon, and was diagnosed with small cell carcinoma, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? My local doctors shoved it off as pregnancy symptoms or being a hypochondriac. I was “too young” to have ovarian cancer. I was having awful pain and vomiting while … Continued
Renee lives in Cadillac, and was diagnosed with carcinosarcoma. What has been your frustration in having a rare form of ovarian cancer? I became frustrated when I was not given much information from my gynecologic oncology team about my cancer. I had to resort to the internet to learn about it. Although my rare type … Continued
Jill lives in Bridgeport, Connecticut, and was diagnosed with grade 3, stage IVB squamous cell carcinoma. What has been your frustration in having a rare form of ovarian cancer? Relaying the severity of my diagnosis to family/friends is incredibly frustrating. I understand the need to focus on the positive, but realistically speaking, there are no … Continued
Have we got a roundup in store! You heard from us a lot in September (thanks to you, we surpassed our Ovarian Cancer Awareness Month fundraising goal!) and there’s still so much to report … research progress, a brand new clinical trial initiative, our upcoming Fall Advocacy Day, and the list goes on. Read on … Continued
B. Dana Kivel has a plea to the ovarian cancer community, to medical professionals, to the world: “See me. Listen to me. I’m one of the people, the tens of thousands of people who have metastatic ovarian cancer.” But while Dana has a gendered gynecologic cancer, their gender identity does not align with what one would … Continued
At first glance, Jonathan Sockolosky and Andrew Berger, may seem like they have very little in common. Jonathan lives in San Francisco and is a scientist, while Andrew lives in New York, and works in the finance industry. Different as they appear, there is one thing that unites them: their connection to ovarian cancer. Both … Continued
Sridevi Challa, PhD, an OCRA grantee at UT Southwestern, is on the receiving end of some major accolades. She is the lead author of a study that dozens of news outlets are describing as having found the “Achilles’ Heel” of ovarian cancer cells. This opens the door for new research in biomarkers and the development … Continued
As we count down to Ovarian Cancer Awareness Month and our virtual National Conference, there are so many ways to get involved … whether by learning more and connecting with others or raising awareness of the disease and vital funds for research. Read on to find out how you can be a voice, and a … Continued
OCRA has invested $110 million in innovative ovarian cancer research — more than any other charity in the world. The good news is, the science is working: new treatments are saving lives, and the next breakthrough could be right around the corner. But we still have much further to go. Despite extraordinary progress, ovarian cancer … Continued
Sharing the facts can save lives. So let’s talk. We need you to help spread the word this Ovarian Cancer Awareness Month! Be an OCRA Ambassador simply by grabbing the graphics below (right-click and save to your computer to download) and sharing on social media, along with our educational quiz. Scroll down to find some … Continued
Brooke lives in Beloit, WI, and has small cell ovarian cancer, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? All of the unknowns in my type of cancer. Unsure what to do at first, very little resources, etc. Without finding our Facebook group….I don’t know if I’d be … Continued
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