Sharing the facts can save lives. So let’s talk. We need you to help spread the word this Ovarian Cancer Awareness Month! Be an OCRA Ambassador simply by grabbing the graphics below (right-click and save to your computer to download) and sharing on social media, along with our educational quiz. Scroll down to find some … Continued
Brooke lives in Beloit, WI, and has small cell ovarian cancer, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? All of the unknowns in my type of cancer. Unsure what to do at first, very little resources, etc. Without finding our Facebook group….I don’t know if I’d be … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. “Inspired Advice” is a blog series that tackles specific topics – from managing a recurrence to discussing your diagnosis with children – and shares advice and reflections from our OCRA … Continued
While it’s important to know the common symptoms of ovarian cancer — bloating, eating less and feeling fuller, abdominal or pelvic pain, urinary symptoms — it’s even more critical to know the risk factors. Knowing your personal risk is the most effective way to reduce the likelihood of ovarian cancer. Take the ovarian cancer quiz: … Continued
Ready, set, action! This group of OCRA Heroes has taken those words to heart by using their creative talents to make a concrete difference for the ovarian cancer community. In recent months, classical singers Phoebe Haines and Rachel Elezi, playwright/director Peter Schmidt, and gamer John Donzelli all harnessed the power of the digital medium to … Continued
Ingrid lives in Denver, Colorado, and was diagnosed with low grade serous ovarian cancer in 2019. What has been your frustration in having a rare form of ovarian cancer? I was diagnosed in January of 2019 with low grade serous ovarian cancer. My doctor said she had to look on Facebook to learn about this … Continued
Sultry summer days can make anyone feel lazy and daydream of faraway places. But at OCRA, we’re working as hard as ever to fulfill our dream of a day when no one need fear an ovarian cancer diagnosis. Check out all that’s happening and discover ways that you can get involved. RESEARCH ADVOCACY PATIENT SUPPORT … Continued
Janice lives in NW Pennsylvania, and was diagnosed in 1997, at age 34, with stage II retiform sertoli-leydig cell ovarian cancer with mucinous heterologous elements. What has been your frustration in having a rare form of ovarian cancer? My frustration was getting my rare cell type identified correctly, then finding out the protocol was experimental. Where … Continued
Sally lives in Mechanicsville, VA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? The most frustrating thing for me is that there is no standard of care and very little research. So little is known about granulosa cell tumor that one of … Continued
Anne lives in Morton, PA, and was diagnosed with small cell carcinoma of the ovary, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? My frustration with having a rare form of ovarian cancer is the lack of doctors with knowledge and/or experience in treating women with SCCOHT. I … Continued
Fortuna lives in Naples, Italy, and has adult granulosa cell cancer. What has been your frustration in having a rare form of ovarian cancer? My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian … Continued
As our community continues to come together to make strides against ovarian cancer, we want to give a shout-out to our many OCRA Heroes who push themselves physically, creatively or in myriad other ways to raise money for research. We’ll be introducing you to many of them in the months to come. First up are … Continued
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