While it’s important to know the common symptoms of ovarian cancer — bloating, eating less and feeling fuller, abdominal or pelvic pain, urinary symptoms — it’s even more critical to know the risk factors. Knowing your personal risk is the most effective way to reduce the likelihood of ovarian cancer. Take the ovarian cancer quiz: … Continued
Ready, set, action! This group of OCRA Heroes has taken those words to heart by using their creative talents to make a concrete difference for the ovarian cancer community. In recent months, classical singers Phoebe Haines and Rachel Elezi, playwright/director Peter Schmidt, and gamer John Donzelli all harnessed the power of the digital medium to … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to adjusting diet and exercise – and shares advice and reflections from our OCRA Inspire Online Community. … Continued
Tracy lives in Alexandria, Virginia, and was diagnosed with stage IV germ cell ovarian cancer at age 27. What has been your frustration in having a rare form of ovarian cancer? I was diagnosed with stage 4 germ cell ovarian cancer eight years ago at age 27. I was devastated and felt like my entire … Continued
Ingrid lives in Denver, Colorado, and was diagnosed with low grade serous ovarian cancer in 2019. What has been your frustration in having a rare form of ovarian cancer? I was diagnosed in January of 2019 with low grade serous ovarian cancer. My doctor said she had to look on Facebook to learn about this … Continued
Sultry summer days can make anyone feel lazy and daydream of faraway places. But at OCRA, we’re working as hard as ever to fulfill our dream of a day when no one need fear an ovarian cancer diagnosis. Check out all that’s happening and discover ways that you can get involved. RESEARCH ADVOCACY PATIENT SUPPORT … Continued
Janice lives in NW Pennsylvania, and was diagnosed in 1997, at age 34, with stage II retiform sertoli-leydig cell ovarian cancer with mucinous heterologous elements. What has been your frustration in having a rare form of ovarian cancer? My frustration was getting my rare cell type identified correctly, then finding out the protocol was experimental. Where … Continued
Sally lives in Mechanicsville, VA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? The most frustrating thing for me is that there is no standard of care and very little research. So little is known about granulosa cell tumor that one of … Continued
Anne lives in Morton, PA, and was diagnosed with small cell carcinoma of the ovary, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? My frustration with having a rare form of ovarian cancer is the lack of doctors with knowledge and/or experience in treating women with SCCOHT. I … Continued
Karien lives in Kingaroy, Queensland, Australia and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? No doctors or surgeons knowing of my diagnosis, no research into it. When I go to a hospital or doctor (I live rural) they just send you home and … Continued
Christine lives in Atlanta, GA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? OB who first found the mass thought it was benign and didn’t run bloodwork that would have caught the GCT tumor prior to surgery, during which she cut the … Continued
Fortuna lives in Naples, Italy, and has adult granulosa cell cancer. What has been your frustration in having a rare form of ovarian cancer? My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian … Continued
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