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Granulosa Cell Tumor | Karien’s #RareAware Story

Granulosa Cell Tumor | Karien’s #RareAware Story

Karien lives in Kingaroy, Queensland, Australia and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? No doctors or surgeons knowing of my diagnosis, no research into it. When I go to a hospital or doctor (I live rural) they just send you home and … Continued

Granulosa Cell Tumor | Christine’s #RareAware Story

Granulosa Cell Tumor | Christine’s #RareAware Story

Christine lives in Atlanta, GA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? OB who first found the mass thought it was benign and didn’t run bloodwork that would have caught the GCT tumor prior to surgery, during which she cut the … Continued

Adult Granulosa Cell Tumor | Fortuna’s #RareAware Story

Adult Granulosa Cell Tumor | Fortuna’s #RareAware Story

Fortuna lives in Naples, Italy, and has adult granulosa cell cancer. What has been your frustration in having a rare form of ovarian cancer? My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian … Continued

Racing to Cure Ovarian Cancer | Heroes Highlights

Racing to Cure Ovarian Cancer | Heroes Highlights

As our community continues to come together to make strides against ovarian cancer, we want to give a shout-out to our many OCRA Heroes who push themselves physically, creatively or in myriad other ways to raise money for research. We’ll be introducing you to many of them in the months to come. First up are … Continued

OCRA’s Woman to Woman Peer Mentor Program Touted in Qualitative Study

OCRA’s Woman to Woman Peer Mentor Program Touted in Qualitative Study

Researchers from the University of Kansas School of Medicine conducted a study to capture the value and experience of giving and receiving peer support in the face of a gynecologic cancer diagnosis by interviewing Woman to Woman Mentors and Mentees from a newly created program at the University of Kansas Medical Center. As the report states, many … Continued

Let’s Cheer On Chris Turner, OCRA Hero!

Let’s Cheer On Chris Turner, OCRA Hero!

Chris Turner is taking on the Sheep Mountain 50 Mile Ultra Marathon in loving memory of his mother, Carla, who passed away from ovarian cancer in 2018. His campaign will raise funds for OCRA’s programs to fight ovarian cancer through scientific research, advocacy, and patient support programs — so that one day, we can find … Continued

Seeking New Insights Into Origins of Ovarian Cancer | Meet a Scientist

Seeking New Insights Into Origins of Ovarian Cancer | Meet a Scientist

“It’s kind of like how the Apollo mission to the moon gave us Velcro.” Dr. David Chapel and his team are laying new groundwork in better understanding the origins of high-grade serous carcinoma, even if the exact applications are hard to see this early on. David, an OCRA grantee, speaks with great passion when he … Continued

Be #RareAware for Rare Ovarian Cancers

Be #RareAware for Rare Ovarian Cancers

Many people are surprised to learn that ovarian cancer is not one disease, but several distinct types and subtypes. Each type differs in who it typically affects, how it spreads, how it’s treated, and its prognosis. High grade serous ovarian cancer (HGSOC) is the most common, and is often the unspoken type we refer to … Continued

Inspired Advice: What Changes to Your Diet and Exercise Routine Have Helped You Since Diagnosis?

Inspired Advice: What Changes to Your Diet and Exercise Routine Have Helped You Since Diagnosis?

Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from managing feelings of isolation to navigating a new diagnosis – and shares advice and reflections from our OCRA Inspire Online Community. … Continued

Empowering Survivorship: Ovarian Cancer Stories

Empowering Survivorship: Ovarian Cancer Stories

Being diagnosed with ovarian cancer or any gynecologic cancer can be an overwhelming experience, and it can help to know that you aren’t alone. Explore ovarian cancer survivor stories as they get real, sharing their experience with navigating ovarian cancer, along with tips and resources that helped them during their most challenging moments. Read their … Continued

Endometrial Carcinoma (MMMT) | Gael’s #RareAware Story

Endometrial Carcinoma (MMMT) | Gael’s #RareAware Story

Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT. What has been your frustration in having a rare form of ovarian cancer? There is no standard of treatment as far as I can figure out.  There is little research that has gone into treatment as there are so few … Continued

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