Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to discussing what’s most-needed from a life partner – and shares advice and reflections from our OCRA Inspire Online Community. They are, in many ways, the experts.
Coping with aloneness
When COVID-19 swept across the globe, self-isolation became a new reality for many. But as pandemic-related restrictions have started to lift, those living with ovarian cancer may still find themselves struggling with feelings of isolation. It’s not uncommon to experience these emotions at any stage of a gynecologic cancer, from diagnosis to treatment and beyond. But there are ways to cope. Read on to get advice from others who have found ways to keep from feeling alone.
Turning to technology to keep in touch
- “I call and email friends and family.”
- “COVID made social interactions more challenging, but social media has been very effective.”
- “I play ‘Words With Friends’ and ‘Carcassonne’ with a friend on my computer.”
- “I FaceTime/Zoom/Skype, call or text.”
- “Keep in touch with friends and colleagues via social media.”
Strengthening ties by showing support
- “Now that I have been vaccinated, I hope to volunteer.”
- “I keep in touch with family and friends daily or weekly depending on what is going on in their life. I don’t wait for them to contact me. I check on them.”
- “Reaching out and supporting others.”
Staying active to stave off loneliness
- “I visit with neighbors on my daily walks.”
- “I found that exercise has helped my mental state.”
- “Even a visit to the grocery store makes me feel like I am with people.”
- “Get outside and walk.”
Finding respite through reading and reflecting
- “I read books.”
- “Prayer and journaling have helped me to stay connected and in a healthy state of mind.”
Maintaining connection through community
- “Connecting to others through Inspire.”
- “Talking and getting together with family and friends.”
- “I read the Inspire posts every day, which is a great way to get advice and know that you are not alone in the fight. It is often inspiring to see so many people who have been fighting for so long.”
- “Connect with friends and church family.”
Reaching out for resources
Please remember, you are not alone. We are here for you. Find support.
OCRA’s ovarian cancer online support community through Inspire.com offers a safe and private place to share encouraging feedback, compassionate support, and honest personal experiences. There are members from across the world who share their questions, concerns, successes and struggles with honesty and courage. Learn more or join our online Ovarian Cancer Inspire community.
