Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT.
What has been your frustration in having a rare form of ovarian cancer?
There is no standard of treatment as far as I can figure out. There is little research that has gone into treatment as there are so few cases. I am guessing little financial motivation.
Where have you found community?
The only community I have found is through OCRA.
How do you feel both a part of and apart from the greater ovarian cancer community?
I have endometrial carcinosarcoma but find this group so supportive that it makes no difference to me that it does not speak to my specific location or type.
What gives you hope?
I get “hope” from hearing from the long time survivors and those who are fighting the battle with such courage.
What do you want to shout from the rooftops?
I am not much of a shouter unless I know there are people listening.
#RareAware is shining a spotlight on the thousands of patients across the United States who are living with a rare form of ovarian cancer — raising awareness, offering resources and information, and building community for those who may feel both a part *of* and apart *from* the larger conversation about ovarian cancer.
