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Empowering Survivorship: Ovarian Cancer Stories

Empowering Survivorship: Ovarian Cancer Stories

Being diagnosed with ovarian cancer or any gynecologic cancer can be an overwhelming experience, and it can help to know that you aren’t alone. Explore ovarian cancer survivor stories as they get real, sharing their experience with navigating ovarian cancer, along with tips and resources that helped them during their most challenging moments. Read their … Continued

Endometrial Carcinoma (MMMT) | Gael’s #RareAware Story

Endometrial Carcinoma (MMMT) | Gael’s #RareAware Story

Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT. What has been your frustration in having a rare form of ovarian cancer? There is no standard of treatment as far as I can figure out.  There is little research that has gone into treatment as there are so few … Continued

Squamous Cell Carcinoma |  Pamela’s #RareAware Story

Squamous Cell Carcinoma | Pamela’s #RareAware Story

Pamela Connor lives in Liverpool, New York, and has a squamous cell carcinoma arising in a mature cystic teratoma. What has been your frustration in having a rare form of ovarian cancer? It’s difficult to get good information, either from my doctors or from other women who have had the same cancer. I also fear … Continued

Granulosa Cell Tumor |  Becca’s #RareAware Story

Granulosa Cell Tumor | Becca’s #RareAware Story

Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued

Adult Granulosa Cell Tumor | April’s #RareAware Story

Adult Granulosa Cell Tumor | April’s #RareAware Story

April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it.  It is frustrating that there is so … Continued

Inspired Advice: How Do You Keep from Feeling Isolated?

Inspired Advice: How Do You Keep from Feeling Isolated?

Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to discussing what’s most-needed from a life partner – and shares advice … Continued

The Overview: May 2021

The Overview: May 2021

Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE

Share for #RareAware

Share for #RareAware

#RareAware is a new campaign from OCRA that will, like its name suggests, raise awareness around rare forms of ovarian cancer — shining a light on the people affected by these rare tumors, offering resources and information, and building community.  Do you have a rare form of ovarian cancer? Please take a few minutes to … Continued

Gaming for an Ovarian Cancer Cure | OCRA Hero

Gaming for an Ovarian Cancer Cure | OCRA Hero

You can call him Panda. Tamborine Panda. Tamborine Panda is the gamer tag John Donzelli created back when he was in college and the first X Box system came out. He had no idea how to go about choosing a name but wanted something “nifty” and memorable.  “My brother said, ‘pick the first two words … Continued

Large Study Suggests Ovarian Cancer Screening in General Public Doesn’t Save Lives

Large Study Suggests Ovarian Cancer Screening in General Public Doesn’t Save Lives

Results from a large British clinical trial, which involved more than 200,000 post-menopausal women who were followed for more than 15 years, showed that screening average-risk, asymptomatic women for ovarian cancer does not reduce deaths from the disease. The results were published in the British medical journal, The Lancet.   The trial, called the UK Collaborative Trial of … Continued

Can You Get Ovarian Cancer At Any Age?

Can You Get Ovarian Cancer At Any Age?

Ovarian cancer is the seventh most commonly occurring cancer in women worldwide, and causes more deaths than any other type of female reproductive cancer. In the United States, it ranks fifth in cancer deaths among women. Certain risk factors can increase the chances of an individual developing ovarian cancer, one being age. Though the cancer … Continued

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