News

Most Women Getting BRCA Test not Getting Genetic Counseling

Most Women Getting BRCA Test not Getting Genetic Counseling

October 7, 2015

(October 7, 2015) A report published in JAMA Oncology shows that most commercially insured women who underwent BRCA genetic testing did not receive genetic counseling by trained genetics professionals.  Lack of clinician recommendation was the most commonly reported reason why they didn’t receive genetic counseling. The study authors examined the factors associated with use of … Continued

Research

Partner Member Profile: Lydia's Legacy

October 6, 2015

When Lydia Greene Ross passed away after a courageous 3-year battle with uterine cancer, her daughter, Carin Ross Johnson, knew something had to be done to make sure that what happened to her mother didn’t happen to anyone else.  At the time Lydia was diagnosed, very little awareness and visibility about gynecologic cancer existed. Carin … Continued

Community

Hormone Replacement Therapy Beneficial to Ovarian Cancer Pa...

Hormone Replacement Therapy Beneficial to Ovarian Cancer Patients

October 1, 2015

(October 1, 2015) A new study published in the Journal of Clinical Oncology shows that women with the most common type of ovarian cancer can safely take hormone replacement therapy (HRT), and it could have a beneficial effect on their survival. The 24-year, phase III international trial provides the strongest evidence yet that women with … Continued

Research

Ovarian Cancer Endpoints at FDA

Ovarian Cancer Endpoints at FDA

October 1, 2015

By Annie Ellis:  On September 3, 2015, Ovarian cancer survivors and FDA Patient Representatives Peg Ford, Susan Leighton and Annie Ellis were invited to provide the patient perspective at the recent Ovarian Cancer Endpoints Workshop hosted by the Food and Drug Administration (FDA).  This meeting was co-sponsored by the Society of Gynecologic Oncology (SGO), the American Association for Cancer Research (AACR) and the American Society of Clinical Oncology (ASCO).  Click plus sign to read more.

Advocacy

Ovarian Cancer Endpoints Workshop hosted by the Food and Dr...

Ovarian Cancer Endpoints Workshop hosted by the Food and Drug Administration (FDA)

October 1, 2015

By Annie Ellis On September 3, 2015, Ovarian cancer survivors and FDA Patient Representatives Peg Ford, Susan Leighton and Annie Ellis were invited to provide the patient perspective at the recent Ovarian Cancer Endpoints Workshop hosted by the Food and Drug Administration (FDA).  This meeting was co-sponsored by the Society of Gynecologic Oncology (SGO), the … Continued

Advocacy

#30DaysofTeal: Day 30

#30DaysofTeal: Day 30

September 30, 2015

This #30DaysofTeal, you helped us give ovarian cancer the spotlight over 1 million times-THANK YOU! But #30DaysofTeal doesn’t stop today…We Teal year round for the everyone affected by ovarian cancer, so keep spreading awareness and the Teal love.

Community

#30DaysofTeal: Day 29

#30DaysofTeal: Day 29

September 29, 2015

Today we are excited to announce the creation of the Congressional Ovarian Cancer Caucus, a group of lawmakers in Washington, DC committed to advancing awareness and research in ovarian cancer. Please help us build this important movement and ask your Member of Congress to join the Caucus today. http://cqrcengage.com/ovarian/app/write-a-letter?7&engagementId=130619

Community

#30DaysofTeal: Day 28

#30DaysofTeal: Day 28

September 28, 2015

Family history also contributes to a woman’s risk of ovarian cancer. Women who have one first-degree relative with ovarian cancer but no known genetic mutation still have an increased risk of developing ovarian cancer.  The lifetime risk of a woman who has a first degree relative with ovarian cancer is five percent (the average woman’s … Continued

Community

#30DaysofTeal: Day 27

#30DaysofTeal: Day 27

September 28, 2015

Today marks the start of National Hereditary Breast and Ovarian Cancer Week and we’re encouraging all women to learn their risk for Hereditary Breast and Ovarian Cancer. Did you know these two diseases are linked, especially for women with mutations in the BRCA1 and BRCA2 genes. Not sure if you might have a mutation? The … Continued

Community

#30DaysofTeal: Day 26

#30DaysofTeal: Day 26

September 28, 2015

All month long we have been celebrating caregivers in our community. Today we are sharing the story of Donella and her mom Dorothey. Dorothey was experiencing the symptoms of ovarian cancer and her general doctor advised to limit her salt intake. Donella, took action and became an advocate for her mom, researching her symptoms and … Continued

Community

#30DaysofTeal: Day 25

#30DaysofTeal: Day 25

September 28, 2015

The National Comprehensive Cancer Network Guidelines for Ovarian Cancer can help walk you through all aspects of an ovarian cancer diagnosis. It answers questions from before a diagnosis through the whole cancer care continuum. You can use this guide as a way to learn more and go back to your doctor with questions you might … Continued

Community

#30DaysofTeal: Day 24

#30DaysofTeal: Day 24

September 28, 2015

Are you interested in making a difference in the lives of women with ovarian cancer? Become an Advocate Leader in 2016! Our Advocate Leaders are a group of highly trained individuals who advance the interests of women with ovarian cancer at the local, state and federal levels. The Advocate Leaders have raised awareness through news … Continued

Community