Karien lives in Kingaroy, Queensland, Australia and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? No doctors or surgeons knowing of my diagnosis, no research into it. When I go to a hospital or doctor (I live rural) they just send you home and … Continued
Christine lives in Atlanta, GA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? OB who first found the mass thought it was benign and didn’t run bloodwork that would have caught the GCT tumor prior to surgery, during which she cut the … Continued
Fortuna lives in Naples, Italy, and has adult granulosa cell cancer. What has been your frustration in having a rare form of ovarian cancer? My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian … Continued
As our community continues to come together to make strides against ovarian cancer, we want to give a shout-out to our many OCRA Heroes who push themselves physically, creatively or in myriad other ways to raise money for research. We’ll be introducing you to many of them in the months to come. First up are … Continued
Chris Turner is taking on the Sheep Mountain 50 Mile Ultra Marathon in loving memory of his mother, Carla, who passed away from ovarian cancer in 2018. His campaign will raise funds for OCRA’s programs to fight ovarian cancer through scientific research, advocacy, and patient support programs — so that one day, we can find … Continued
“It’s kind of like how the Apollo mission to the moon gave us Velcro.” Dr. David Chapel and his team are laying new groundwork in better understanding the origins of high-grade serous carcinoma, even if the exact applications are hard to see this early on. David, an OCRA grantee, speaks with great passion when he … Continued
Being diagnosed with ovarian cancer or any gynecologic cancer can be an overwhelming experience, and it can help to know that you aren’t alone. Explore ovarian cancer survivor stories as they get real, sharing their experience with navigating ovarian cancer, along with tips and resources that helped them during their most challenging moments. Read their … Continued
Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT. What has been your frustration in having a rare form of ovarian cancer? There is no standard of treatment as far as I can figure out. There is little research that has gone into treatment as there are so few … Continued
Pamela Connor lives in Liverpool, New York, and has a squamous cell carcinoma arising in a mature cystic teratoma. What has been your frustration in having a rare form of ovarian cancer? It’s difficult to get good information, either from my doctors or from other women who have had the same cancer. I also fear … Continued
Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued
April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it. It is frustrating that there is so … Continued
Angela Marie lives in Valdosta, Georgia, and was diagnosed with a mixed yolk sac tumor and adult granulosa cell tumor at age 24. What has been your frustration in having a rare form of ovarian cancer? In having a rare ovarian cancer type, initially my biggest frustration was the lack of information out there for … Continued
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