Christine lives in Atlanta, GA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? OB who first found the mass thought it was benign and didn’t run bloodwork that would have caught the GCT tumor prior to surgery, during which she cut the … Continued
Fortuna lives in Naples, Italy, and has adult granulosa cell cancer. What has been your frustration in having a rare form of ovarian cancer? My frustrations were, and are, that there is not a lot of information available about my cancer, and even if you try to share your story with other people with ovarian … Continued
Many people are surprised to learn that ovarian cancer is not one disease, but several distinct types and subtypes. Each type differs in who it typically affects, how it spreads, how it’s treated, and its prognosis. High grade serous ovarian cancer (HGSOC) is the most common, and is often the unspoken type we refer to … Continued
Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT. What has been your frustration in having a rare form of ovarian cancer? There is no standard of treatment as far as I can figure out. There is little research that has gone into treatment as there are so few … Continued
Pamela Connor lives in Liverpool, New York, and has a squamous cell carcinoma arising in a mature cystic teratoma. What has been your frustration in having a rare form of ovarian cancer? It’s difficult to get good information, either from my doctors or from other women who have had the same cancer. I also fear … Continued
Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued
April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it. It is frustrating that there is so … Continued
Angela Marie lives in Valdosta, Georgia, and was diagnosed with a mixed yolk sac tumor and adult granulosa cell tumor at age 24. What has been your frustration in having a rare form of ovarian cancer? In having a rare ovarian cancer type, initially my biggest frustration was the lack of information out there for … Continued
#RareAware is a new campaign from OCRA that will, like its name suggests, raise awareness around rare forms of ovarian cancer — shining a light on the people affected by these rare tumors, offering resources and information, and building community. Do you have a rare form of ovarian cancer? Please take a few minutes to … Continued
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