Be a voice for the ovarian cancer community. Update: The deadline to apply for our 2019 Advocate Leader program has now passed. (August 28, 2018) Registration is now open for our 2019 Advocate Leader program. Apply today to join our diverse community of survivors, caregivers and activists from across the country using their voices to effect … Continued
Name: Sayla H.Hometown: Portland, ORStatus: In treatmentAdvocacy Goal: Oral Parity, Access to Care Sayla was diagnosed earlier last year and is currently in treatment. She’s determined to use her experience to help other women, and is empowered to advocate for women fighting ovarian cancer through OCRA’s Advocate Leader program. Tell us about your ovarian cancer … Continued
Name: Elise D.Hometown: Durham, NHStatus: 13-Year SurvivorAdvocacy Goal: Access to Care Elise feels lucky that she was diagnosed with early-stage ovarian cancer, and being an Advocate Leader allows her to fight for women who may not be able to fight for themselves. Tell us about your ovarian cancer journey. In the summer of 2005, I … Continued
(Oct. 11, 2017) Last week, the Trump Administration issued a regulation to immediately allow employers to deny insurance coverage for birth control on the basis of their own moral or religious objections, undermining the landmark benefit under the Affordable Care Act (ACA) that guarantees coverage for contraception without co-pays or cost-sharing. Audra Moran, President and … Continued
According to recent reports, the Department of Health and Human Services (HHS) will soon seek to limit access to oral contraception benefits. “The proposed rule allowing employers to deny insurance coverage for birth control limits the application of oral contraceptives in preventive medicine, in particular, for ovarian cancer. Oral contraceptives have been shown to reduce … Continued
The White House has released a proposed budget for FY2018 that makes drastic cuts to the budgets for the National Institute of Health (NIH) and Centers for Disease Control and Prevention (CDC). These cuts would reduce the NIH budget by 20% and threaten to halt breakthrough medical research advancements and delay life-saving cures. The proposed … Continued
As the voice for women with ovarian cancer on Capitol Hill, OCRFA fights to secure funding for ovarian cancer research and education at the federal level. In 2016, with the help of committed Advocate Leaders, Grassroots Advocates, Research Advocates and action alert supporters, OCRFA was able to: We’ve made great strides in ensuring that ovarian … Continued
The Kolker Fellowship commemorates the legacy of pioneering health policy advocate Ann Kolker. At the time Ann was diagnosed with ovarian cancer in 1996, she was already a political powerhouse, having early involvement with organizations like the National Women’s Political Caucus and Emily’s List. We are now accepting applications for the Fall 2017 Fellowship.
On September 7th, the FDA issued an important safety communication about tests marketed as ovarian cancer screening tests, including the ROCA Test developed by Abcodia Incorporated. The FDA states, “despite extensive research and published studies, there are currently no screening tests for ovarian cancer that are sensitive enough to reliably screen for ovarian cancer without a … Continued
Join us in asking Congress to pass oral chemotherapy parity legislation today. This legislation will ensure that patients have access to the best chemotherapy drugs available, including many personalized therapies. Send an Action Alert to your Members of Congress Today! Why do we need this action now? The last decade has seen an explosion in … Continued
Miss USA, Deshauna Barber, joined Chad Ramsey and Lisa Mauti on Capitol Hill to meet with Members of Congress to educate them about ovarian cancer. Deshauna spoke with Members about Oral Chemotherapy Parity, asked for more research and awareness, and let them know just how important our community is.
Reps. Sean Duffy (R-WI) and Rosa DeLauro (D-CT) to speak at briefing on the state of ovarian cancer in the United States Watch the Briefing WASHINGTON, D.C. — Today, Reps. Sean Duffy and Rosa DeLauro, both of whom had personal experiences with ovarian cancer, will celebrate the first anniversary of the Congressional Ovarian Cancer Caucus … Continued
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