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Action Alert: Tell Congress to Support Full Funding for OCRP

Action Alert: Tell Congress to Support Full Funding for OCRP

The Ovarian Cancer Research Program (OCRP) is a cutting-edge program housed within the Department of Defense. Despite a history of successful breakthroughs, the program has long been drastically underfunded. The House and Senate are currently working to determine funding levels for programs in Fiscal Year 2021. As you may remember, last year ovarian cancer advocates … Continued

OCRA Supports The CLINICAL TREATMENT Act (H.R. 913)

OCRA Supports The CLINICAL TREATMENT Act (H.R. 913)

For many ovarian cancer patients, clinical trials offer a promising avenue for expanding treatment options and extending survival. Unfortunately, participation comes at a steep financial cost that is often prohibitive – even for patients with health insurance. Over 20 percent of cancer patients report out-of-pocket costs as a major barrier to joining a trial.  The costs of … Continued

Drawing Upon Strength, Speaking Her Truth | Meet an Advocate Leader

Drawing Upon Strength, Speaking Her Truth | Meet an Advocate Leader

“When something is important to you. Be passionate about it. Stay in their face.” That was the advice Kandis Draw received from her mother over and over as she was growing up. She saw echoes of that statement reflected in the three women – Kandis’ mother and her two aunts (dear friends of her mother) … Continued

Connecting Survivors to the Science | Meet a Research Advocate

Connecting Survivors to the Science | Meet a Research Advocate

To speak with Kimberly Richardson is to feel an instant camaraderie with someone who exhibits both calm and conviction, thoughtfulness and frank talk. She has learned a lot in the past 20 years – running triathlons, running a nonprofit in Chicago focused on small business development, teaching urban sociology as an adjunct professor – and … Continued

A Statement from OCRA

A Statement from OCRA

If there’s one thing that working toward an end to ovarian cancer has taught us, it’s that life is precious. We value the life of every person in our ovarian cancer community, and celebrate its diversity and strength. But today we stand in solidarity with our ovarian cancer community–and communities all over this country–in saying … Continued

Speaking Out for Those Who Can’t | Meet an Advocate Leader

Speaking Out for Those Who Can’t | Meet an Advocate Leader

In 2005, Denise Lobodinski’s sister Renee was diagnosed with ovarian cancer at the age of 47. That same year, their father was diagnosed with prostate cancer. But her father’s doctor told Denise’s mother, “Don’t worry about your husband. Worry about your daughter.” In fifteen years, Denise feels like very little has changed in terms of … Continued

Survey: Navigating Treatment in the Time of Covid-19

Survey: Navigating Treatment in the Time of Covid-19

Covid-19 has disrupted nearly every aspect of life as we know it, and navigating a diagnosis and treatment for ovarian cancer – already a game changer – has been impacted as well. We want to better understand from our community exactly how this pandemic is affecting access to, and decisions around, treatment and clinical trials … Continued

Making Calls and Taking Charge to Educate Others  | Meet an Advocate Leader

Making Calls and Taking Charge to Educate Others | Meet an Advocate Leader

Sandy Sullivan has a favorite quote that she keeps pinned to her bulletin board. It reads, “If you’re lucky enough to get a second chance at something, don’t waste it.” It’s a powerful statement for anyone, but especially poignant for someone surviving ovarian cancer. And yet, Sandy has always lived her adult life – even … Continued

Survivors Teaching Students Crosses the Digital Divide for Medical Students

Survivors Teaching Students Crosses the Digital Divide for Medical Students

Last year, nearly 13,000 medical and nursing students gained a better understanding of ovarian cancer—an understanding they’ll carry with them as they begin seeing patients of their own—by hearing the stories of our Survivors Teaching Students® survivor and caregiver volunteers. These experiences, shared face to face in classrooms with future healthcare professionals, leave a more … Continued

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