PARP inhibitors have proven to be particularly valuable in improving progression-free survival for patients with certain types of ovarian cancer. But unfortunately, these gains come at a high financial cost to many patients, with a recent study showing that Medicare beneficiaries are the hardest hit. A team of researchers from The University of Alabama at … Continued
February 16, 2021 President Joseph R. Biden, Jr.The White House1600 Pennsylvania Avenue, NWWashington, DC 20500 Dear Mr. President: On behalf of a broad spectrum of organizations, cancer centers, and other institutions that represent laboratory, translational, and clinical researchers; other health care professionals; millions of patients with cancer; and patient advocates, we are writing today to … Continued
We have great hope for the year ahead, and much of that is buoyed by what we accomplished, with your help, in 2020. A quick look back at the numbers… Thank you for everything you have done to make this happen. We hope you enjoy reading about what lies ahead. RESEARCH ADVOCACY PATIENT SUPPORT & … Continued
If you’ve ever wanted to join us for Spring Advocacy Day, but couldn’t make it to Capitol Hill, now is your chance! Every spring, we bring together survivors, caregivers and supporters in Washington, D.C., to advocate for issues important to the ovarian cancer community. It’s a rare opportunity to communicate directly with your Members of … Continued
Registration closes on December 17, 2021. Together, we made great strides in 2020 on Capitol Hill, and we are excited to announce that we now have more OCRA Advocate Leaders than ever before speaking up for the ovarian cancer community. With more than 120 individuals selected—including 53 returning participants—our Advocate Leader program has more than … Continued
We’re probably all ready to say goodbye to 2020, if we have to be honest with ourselves. And yet, we can’t look back and say that the year was entirely bad. With your support, OCRA actually accomplished quite a lot and we have much for which to feel hopeful. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS WAYS TO GIVE … Continued
Urge your U.S. Senators to restore full funding for ovarian cancer research The Ovarian Cancer Research Program (OCRP) housed within the Department of Defense is the federal government’s only program dedicated entirely to ovarian cancer research. Yet, funding for it is in serious jeopardy of being slashed by more than two-thirds. Though the House passed legislation … Continued
We’re full on into fall, and giving thanks for all that we’ve accomplished together, in a year that’s been more than a little challenging. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
I never say, ‘I have cancer,’ because it’s not mine. I’m dealing with it. Elle Simone In the same way that a complex dish is made up of distinct ingredients that blend together and bring out new flavors, Elle Simone’s life resembles something that could only come out of a Michelin-rated restaurant. Elle is really … Continued
Be a voice for the ovarian cancer community. Please note: The deadline for application was December 7, 2020. Sign up for email alerts to stay updated on opportunities to take action! Apply today to join survivors, caregivers and activists from across the country using their voices to affect change for those touched by ovarian cancer. As … Continued
The Supreme Court is poised to consider California v. Texas, which will decide the fate of the Affordable Care Act (ACA) — their decision could threaten health coverage for millions of people with pre-existing conditions, including ovarian cancer. OCRA is vigilantly monitoring this upcoming decision, and preparing strategies for addressing any outcomes that may threaten … Continued
In August, OCRA hosted a listening session with the U.S. Food and Drug Administration (FDA) to better understand the impact of Covid-19 on clinical trial participation. Watch the full FDA listening session in the video below.
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