The Overview: November 2020
We’re full on into fall, and giving thanks for all that we’ve accomplished together, in a year that’s been more than a little challenging. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
News
Talking Representation and Resources with Elle Simone | Survivor Stories
I never say, ‘I have cancer,’ because it’s not mine. I’m dealing with it. Elle Simone In the same way that a complex dish is made up of distinct ingredients that blend together and bring out new flavors, Elle Simone’s life resembles something that could only come out of a Michelin-rated restaurant. Elle is really … Continued
Now Accepting Applications for 2021 Advocate Leader Program
Be a voice for the ovarian cancer community. Please note: The deadline for application was December 7, 2020. Sign up for email alerts to stay updated on opportunities to take action! Apply today to join survivors, caregivers and activists from across the country using their voices to affect change for those touched by ovarian cancer. As … Continued
OCRA’s Statement on SCOTUS and the Affordable Care Act (ACA)
The Supreme Court is poised to consider California v. Texas, which will decide the fate of the Affordable Care Act (ACA) — their decision could threaten health coverage for millions of people with pre-existing conditions, including ovarian cancer. OCRA is vigilantly monitoring this upcoming decision, and preparing strategies for addressing any outcomes that may threaten … Continued
OCRA Hosts Listening Session With FDA About COVID-19
OCRA Hosts Listening Session With FDA About COVID-19
In August, OCRA hosted a listening session with the U.S. Food and Drug Administration (FDA) to better understand the impact of Covid-19 on clinical trial participation. Watch the full FDA listening session in the video below.
The Overview: October 2020
It’s been an incredibly busy end of summer/beginning of fall here at OCRA with a double header of Ovarian Cancer Awareness Month and our Uniting for Hope Ovarian Cancer National Conference. We’ve learned so much and strengthened our community. Here are just some of the ways: RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS OCRA HEROES EVENTS WAYS TO … Continued
Making Government Work for People … Especially the Ovarian Cancer Community
US Representative Rosa DeLauro (D-CT) is the Chair and founder of the Congressional Ovarian Cancer Caucus. Established in 2015, the Caucus set out to raise awareness of ovarian cancer symptoms and support for research. This was almost a decade after Representative DeLauro helped lead a bipartisan coalition to pass the original Johanna’s Law – also … Continued
Everything You Need to Know About Johanna’s Law and Reauthorization
An important victory for the ovarian cancer community came in 2006 when Congress passed Johanna’s Law. What is Johanna’s Law? Also known as The Gynecologic Cancer Education and Awareness Act, the legislation supports a variety of programs, research projects and activities at Centers for Disease Control and Prevention (CDC) aimed at educating healthcare providers and … Continued
Ovarian Cancer Awareness Month Toolkit
With 1 in 78 diagnosed with ovarian cancer—and no early detection test for the disease—it is crucial that we spread the word so others can be knowledgeable about the symptoms and risk factors. We need YOUR help to share the facts this Ovarian Cancer Awareness Month! Below are graphics and sample language for you to … Continued
The Overview: July 2020
There’s so much happening at OCRA – from groundbreaking research to advocacy work, patient support to fundraising efforts. Starting this summer, we will share periodic highlights so that you can stay up to date on the latest. Research A pandemic won’t stop us from our mission to cure ovarian cancer. OCRA is now accepting applications for 2021 … Continued
Shaking Things Up from a Little Town in West Virginia | Meet an Advocate Leader
“Don’t settle” This simple two-word mantra is what guides Roxanne Bright – self-proclaimed dog mom, crafter, and 9-year ovarian cancer survivor from West Virginia who is on a mission to use her voice for good. “Once you’ve heard the word ‘cancer’ tied to your name, you don’t want to settle for anything less than a … Continued
Action Alert: Tell Congress to Support Full Funding for OCRP
The Ovarian Cancer Research Program (OCRP) is a cutting-edge program housed within the Department of Defense. Despite a history of successful breakthroughs, the program has long been drastically underfunded. The House and Senate are currently working to determine funding levels for programs in Fiscal Year 2021. Urge your Members of Congress to support full funding … Continued