In the late 1990s, Sue Friedman was diagnosed with breast cancer. She learned that she carried a mutation in the BRCA gene that made her more likely to develop both breast and ovarian cancers. Sue felt that none of the existing breast and ovarian cancer groups met the needs of women at high risk for … Continued
Ovar’Coming Together has the distinction of being both a Partner Member and a founding member of the Ovarian Cancer National Alliance. Based in Indianapolis, the organization was founded in 1995 by three women who were going through chemotherapy at the same time. “Kai Binford, Pam Faerber and Nancy Hines created Ovar’Coming Together when they realized … Continued
The Georgia Ovarian Cancer Alliance got its start in 1998, when 13 survivors met. “They saw that there was a lot of work being done around research and testing,” says Doug Barron, Executive Director of the group. “But there was nothing for women about education and awareness of the risks and symptoms. Our founders wanted … Continued
John Hansbury and Sherry Jacobson elected Co-Presidents, Raynor Dahlquist and Bronwen Smith join Board of Directors New York, NY October 19, 2011— Ovarian Cancer Research Fund (OCRF) is pleased to announce the election of Co-Presidents to its Board of Directors, John W. Hansbury, Esq., and Sherry Jacobson. Hansbury and Jacobson have both served on the … Continued
In 1999, a small group of ovarian cancer survivors decided to get together to provide support for each other. The next year, they held the first walk/run in Minnesota for ovarian cancer. The organizers were surprised when hundreds of people joined the walk and raised $91,000. It brought home the message that there was a … Continued
(New York, NY – October 4, 2011) – A unique support program that pairs women with gynecologic cancer with volunteers who have survived the disease is coming to NewYork-Presbyterian Hospital. The national Woman to Woman program, funded by Ovarian Cancer Research Fund (OCRF), was first established at The Mount Sinai Medical Center, and OCRF plans … Continued
The Cancer Support Community (CSC) is one of the Ovarian Cancer National Alliance’s national Partner Members, a relationship that strengthens both groups. Vice President of Education and Outreach Ivy Ahmed notes: “We’re not a tumor specific organization—we serve people with all cancer types. Being a Partner Member of the Alliance helps us provide resources specific … Continued
08/17/2011Researchers in the United Kingdom have discovered a new genetic mutation that increases the risk for ovarian cancer. This major finding was published online in the journal Nature Genetics on August 7th. Much like the BRCA1 and BRCA2 mutations, which were discovered in the 1990s and which also increase a woman’s risk for ovarian cancer, … Continued
08/09/2011 Earlier this year, OCRF welcomed two new members to its Scientific Advisory Committee: Ronny I. Drapkin, MD, PhD and Sandra Orsulic, PhD. Both Drs. Drapkin and Orsulic are experts in ovarian cancer research, and bring valuable additional experience to our now thirteen-member Scientific Advisory Committee. In addition, both are past recipients of OCRF grants. … Continued
Drop by the Petaluma Arts Center on September 2, and you will find a building bedecked in teal. The Women’s Cancer Awareness Group is using “yarn-bombing”—decorating a public structure or space with yarn—to raise awareness of ovarian cancer. Groups of knitters have gathered once a week to create teal items for the project; those who … Continued
The Ovarian Cancer National Alliance’s 14th Annual Conference, “Turning Promise into Action,” just wrapped up. What a conference it was! Hundreds of researchers, clinicians, survivors and caregivers attended the largest ovarian cancer-specific conference in the country. They learned about the latest in research, diagnosis, treatment and quality of life for women with ovarian cancer. This … Continued
When Jean Shipos survived a recurrence of ovarian cancer in 2003, she and her daughter vowed to raise awareness of the disease. They got involved with a local run/walk, organizing a team and fundraising each year. In 2006, Jean’s daughter suggested starting an event of their own. “We can’t keep hitting up the same friends … Continued
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