“It’s kind of like how the Apollo mission to the moon gave us Velcro.” Dr. David Chapel and his team are laying new groundwork in better understanding the origins of high-grade serous carcinoma, even if the exact applications are hard to see this early on. David, an OCRA grantee, speaks with great passion when he … Continued
Many people are surprised to learn that ovarian cancer is not one disease, but several distinct types and subtypes. Each type differs in who it typically affects, how it spreads, how it’s treated, and its prognosis. High grade serous ovarian cancer (HGSOC) is the most common, and is often the unspoken type we refer to … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from managing feelings of isolation to navigating a new diagnosis – and shares advice and reflections from our OCRA Inspire Online Community. … Continued
Being diagnosed with ovarian cancer or any gynecologic cancer can be an overwhelming experience, and it can help to know that you aren’t alone. Explore ovarian cancer survivor stories as they get real, sharing their experience with navigating ovarian cancer, along with tips and resources that helped them during their most challenging moments. Read their … Continued
Gael Ross lives in Durham, North Carolina, and has endometrial carcinoma, also known as MMMT. What has been your frustration in having a rare form of ovarian cancer? There is no standard of treatment as far as I can figure out. There is little research that has gone into treatment as there are so few … Continued
Pamela Connor lives in Liverpool, New York, and has a squamous cell carcinoma arising in a mature cystic teratoma. What has been your frustration in having a rare form of ovarian cancer? It’s difficult to get good information, either from my doctors or from other women who have had the same cancer. I also fear … Continued
Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued
April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it. It is frustrating that there is so … Continued
Angela Marie lives in Valdosta, Georgia, and was diagnosed with a mixed yolk sac tumor and adult granulosa cell tumor at age 24. What has been your frustration in having a rare form of ovarian cancer? In having a rare ovarian cancer type, initially my biggest frustration was the lack of information out there for … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to discussing what’s most-needed from a life partner – and shares advice … Continued
Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
#RareAware is a new campaign from OCRA that will, like its name suggests, raise awareness around rare forms of ovarian cancer — shining a light on the people affected by these rare tumors, offering resources and information, and building community. Do you have a rare form of ovarian cancer? Please take a few minutes to … Continued
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