Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued
April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it. It is frustrating that there is so … Continued
Angela Marie lives in Valdosta, Georgia, and was diagnosed with a mixed yolk sac tumor and adult granulosa cell tumor at age 24. What has been your frustration in having a rare form of ovarian cancer? In having a rare ovarian cancer type, initially my biggest frustration was the lack of information out there for … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to discussing what’s most-needed from a life partner – and shares advice … Continued
Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
#RareAware is a new campaign from OCRA that will, like its name suggests, raise awareness around rare forms of ovarian cancer — shining a light on the people affected by these rare tumors, offering resources and information, and building community. Do you have a rare form of ovarian cancer? Please take a few minutes to … Continued
New research from The Wistar Institute and Peter MacCallum Cancer Center has uncovered a previously unknown checkpoint mechanism for gene expression, that may open up new avenues for transcription-based targeted cancer therapies in the future. This exciting study, published in the cancer journal Cell, was made possible in part by an OCRA research grant to … Continued
You can call him Panda. Tamborine Panda. Tamborine Panda is the gamer tag John Donzelli created back when he was in college and the first X Box system came out. He had no idea how to go about choosing a name but wanted something “nifty” and memorable. “My brother said, ‘pick the first two words … Continued
Results from a large British clinical trial, which involved more than 200,000 post-menopausal women who were followed for more than 15 years, showed that screening average-risk, asymptomatic women for ovarian cancer does not reduce deaths from the disease. The results were published in the British medical journal, The Lancet. The trial, called the UK Collaborative Trial of … Continued
Ovarian cancer is the seventh most commonly occurring cancer in women worldwide, and causes more deaths than any other type of female reproductive cancer. In the United States, it ranks fifth in cancer deaths among women. Certain risk factors can increase the chances of an individual developing ovarian cancer, one being age. Though the cancer … Continued
Your video will help connect more people to our research, advocacy and support programs! What is your connection to ovarian cancer? What is your involvement, and why do you support OCRA? (note: please say O.C.R.A., rather than pronounce it as “okra”) What is your hope for the ovarian cancer community? Quick tips: Horizontal video is preferred. Please avoid backlighting and distracting … Continued
The first part of this year’s annual meeting of the AACR was titled “Discovery Science Driving Clinical Breakthroughs” and was held virtually from April 10 to 14, 2021. Two OCRA Research Advocates, Elise Daniel and Annie Ellis (a member of OCRA’s Scientific Advisory Committee), participated in the Scientist<->Survivor Program (SSP), which is designed to build … Continued
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