Recently we announced that OCRA’s 2020 National Conference will take place virtually on September 29-October 2, 2020. We are very excited to bring you an amazing program featuring information on the latest ovarian cancer research and treatment, engaging breakout sessions, self-care and wellness support, and community-building activities, along with a few surprises too! We understand … Continued
“When something is important to you. Be passionate about it. Stay in their face.” That was the advice Kandis Draw received from her mother over and over as she was growing up. She saw echoes of that statement reflected in the three women – Kandis’ mother and her two aunts (dear friends of her mother) … Continued
(June 16, 2020) Ovarian cancer is the deadliest gynecologic cancer and fifth leading cause of cancer deaths in women in the United States. There is no effective screening tool and early symptoms are often vague, or altogether absent. Most cases are diagnosed in later stages, when treatment options are limited and chances for survival diminished. … Continued
Duygu Ozmadenci, PhD, grew up in a small town on the Black Sea region of Turkey, across the waters from Chernobyl. As a teenager, she read a book that told stories of generations of people living in Anatolia and the land that eventually became Turkey. The depictions of the geography and flora, the description of … Continued
(June 11, 2020) Letters of Intent (LOIs) for Ovarian Cancer Research Alliance’s 2021 scientific grant awards are now open for submission. LOIs are due by July 10, 2020. Accepting LOIs is step one of OCRA’s highly competitive grant process. After LOIs are received, they are reviewed by our Scientific Advisory Committee (SAC), an esteemed group … Continued
To speak with Kimberly Richardson is to feel an instant camaraderie with someone who exhibits both calm and conviction, thoughtfulness and frank talk. She has learned a lot in the past 20 years – running triathlons, running a nonprofit in Chicago focused on small business development, teaching urban sociology as an adjunct professor – and … Continued
First-of-its-kind clinical trial validates remote genetic counseling (New York) June 01, 2020 – Genetic testing for cancer risk can significantly improve the prevention or treatment of hereditary cancers, but studies have shown that people who might have a genetic risk often don’t get tested. A collaborative Stand Up To Cancer ‘Dream Team’ of researchers co-funded … Continued
If there’s one thing that working toward an end to ovarian cancer has taught us, it’s that life is precious. We value the life of every person in our ovarian cancer community, and celebrate its diversity and strength. But today we stand in solidarity with our ovarian cancer community–and communities all over this country–in saying … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from managing treatment-related nausea to intimacy post-diagnosis – and shares advice and reflections from our OCRA Inspire … Continued
In 2005, Denise Lobodinski’s sister Renee was diagnosed with ovarian cancer at the age of 47. That same year, their father was diagnosed with prostate cancer. But her father’s doctor told Denise’s mother, “Don’t worry about your husband. Worry about your daughter.” In fifteen years, Denise feels like very little has changed in terms of … Continued
Covid-19 has disrupted nearly every aspect of life as we know it, and navigating a diagnosis and treatment for ovarian cancer – already a game changer – has been impacted as well. We want to better understand from our community exactly how this pandemic is affecting access to, and decisions around, treatment and clinical trials … Continued
Scared. Overwhelmed. Exhausted. Befuddled. These are common words one might use to describe how we feel during this unprecedented time in history. But Dmitriy Zamarin, MD, PhD, adds “fascinated” to the list as he ponders the psychological and sociological implications of the Covid-19 pandemic. “This small amount of genetic material that has spread through the … Continued
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