Advocate Leader Resource Bank
These materials are intended to help you learn more about advocacy and policy at the federal, state, and local levels. If you have any questions or suggestions, please reach out to Emily Hynes (ehynes@ocrahope.org).
OCRA Resources
Advocate Leaders Program
- OCRA Advocate Leaders Manual 2024
- OCRA Advocate Leaders Toolkit 2024
- OCRA Committee Descriptions
- OCRA Committee Position Descriptions
- OCRA Committee Chairs and Vice Chairs
- Basecamp Training Videos
Advocacy Day
Ovarian Cancer Awareness Month
Government Process and Programs Resources
Federal Budget Process and Federal Programs
Passing Legislation
- How Legislation is Passed in the Senate
- How Legislation is Passed in the House of Representatives
- How the House and Senate Settle Legislative Differences
- Guide to Reading a Legislative Measure
State Level Government
Structure of Congress
Advocacy Resources
Your Representatives
- How to Find Who Represents You at the Federal, State, and Local Level
- Building Relationships with Your Representatives
- How to Conduct an In-Person Meeting with Your Representatives
Tracking Legislation
Policy and Advocacy Writing
Issue Area Resources
Health Disparities
Financial Toxicity and Copay Accumulators
- Financial Toxicity and Cancer Treatment – from NCI
- HELP Copays Act
- Discriminatory Copay Policies Undermine Coverage for People with Chronic Illness – from The AIDS Institute
- Lawsuit Challenges Federal Copay Accumulator Policy – from Health Affairs
Clinical Trials
- Recruitment to Cancer Clinical Trials: Challenges and Strategies – from NCI
- Overview of the DIVERSE Trials Act – from ACS CAN
Genetic Testing
Research Studies
Health Disparities
Genetic Testing
- Evaluation of Germline Genetic Testing Criteria in a Hospital-Based Series of Women with Breast Cancer
- Limitations of Direct-to-Consumer (DTC) Genetic Testing for Hereditary Breast and Ovarian Cancer