Ovarian cancer survivor Susan Leighton reports on her experience at the American Association of Cancer Researchers meeting, which took place in April 2013. For the second year in a row I had the privilege of being selected to attend the Scientist-Survivor Program (SSP) of the American Association of Cancer Researchers. The SSP program was established … Continued
At this year’s Society of Gynecologic Oncology (SGO) Annual Meeting, numerous presentations and posters explored issues related to ovarian cancer, some of which are summarized below. This year’s SGO Annual Meeting theme, “Embrace the Past, Revolutionize the Future,” was especially fitting given the changing landscape of ovarian cancer treatment. As the Cancer Genome Atlas reveals … Continued
Calaneet Balas, OCNA’s Chief Executive Officer, testified before the House Subcommittee on Labor, Health and Human Services, Education, and Related Agencies on Wednesday, March 13. Her remarks touched on the importance of federal funding for ovarian cancer education and research through the National Cancer Institute and Centers for Disease Control and Prevention. Summing up our … Continued
For immediate release: February 28, 2013 Washington, DC—The federal government recently released regulations that clarify which preventive services will be covered under the Affordable Care Act without cost sharing for patients enrolled in private insurance plans. Preventive services are provided without cost sharing to people enrolled in private plans that were established after August 1, … Continued
Many people who live near the poverty line are surprised to learn that they do not qualify for health insurance under Medicaid. Each state sets its own rules for this program, based on income and other qualifying factors. This may soon change, thanks to a provision in the health reform law that encourages states to … Continued
The Supreme Court of the United States will hear arguments in a case seeking to invalidate the patents on the BRCA1 and BRCA2 mutations. The patent-holder, Myriad Laboratories, owns patents on the genetic mutations themselves. The Alliance has joined the suit, led by the ACLU. Read the ACLU’s press release here
On Tuesday, the Department of Health and Human Services released three regulations related to implementation of health reform. One of these rules concerned guaranteed issue and a ban on pre-existing condition exclusion for adults. To learn more about these regulations see the article here The 131 pages of regulations can be found here
As a condition of receiving public monies for research, the researchers must make available the results of their work. The National Institutes of Health will begin to delay grants to those who do not comply with this policy. When a bill was introduced to cripple this policy, the Alliance worked with the patient advocacy community … Continued
This morning the Ovarian Cancer National Alliance sent a letter to President Obama congratulating him on his re-election and outlining some of our policy priorities for his second term. Click here to view a pdf of the letter, or read it below. November 7, 2012 President Barack Obama 1600 Pennsylvania Avenue, NW Washington, DC 20500 … Continued
Michelle Andrews of Kaiser Health News talks about health insurance companies’ coverage of chemotherapy. Watch the clip here.
Washington, DC—On September 10, the United States Preventive Services Task Force (USPSTF) updated its recommendations on ovarian cancer screening. Based on current medical evidence, a committee of experts advised that women at average risk of developing ovarian cancer should not be screened for the disease. The recommendation does not apply to women who are experiencing … Continued
Advocate Report: Summer 2012 Susan Leighton Summer 2012 was filled with an abundance of advocacy opportunities including the American Association of Cancer Researchers (AACR) Survivor-Scientist Program, the Drug Information Association (DIA) Fellow Program, OCNA’s National Conference, and the Biennial Cancer Survivorship Research Conference. As I began making the rounds of this year’s events, I truly … Continued
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