Pamela Connor lives in Liverpool, New York, and has a squamous cell carcinoma arising in a mature cystic teratoma. What has been your frustration in having a rare form of ovarian cancer? It’s difficult to get good information, either from my doctors or from other women who have had the same cancer. I also fear … Continued
Becca Cahall lives in Baltimore, Maryland, and has a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? That there is not much research on it. I can’t google it like other cancers and there aren’t many studies on it. Plus, mainly older women are diagnosed with ovarian … Continued
April Bupp lives in York, Pennsylvania, and has an adult granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? Having a rare form of cancer that accounts for only 1-2% of ovarian cancer means there is very little research/information on it. It is frustrating that there is so … Continued
Angela Marie lives in Valdosta, Georgia, and was diagnosed with a mixed yolk sac tumor and adult granulosa cell tumor at age 24. What has been your frustration in having a rare form of ovarian cancer? In having a rare ovarian cancer type, initially my biggest frustration was the lack of information out there for … Continued
Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to discussing what’s most-needed from a life partner – and shares advice … Continued
Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
#RareAware is a new campaign from OCRA that will, like its name suggests, raise awareness around rare forms of ovarian cancer — shining a light on the people affected by these rare tumors, offering resources and information, and building community. Do you have a rare form of ovarian cancer? Please take a few minutes to … Continued
You can call him Panda. Tamborine Panda. Tamborine Panda is the gamer tag John Donzelli created back when he was in college and the first X Box system came out. He had no idea how to go about choosing a name but wanted something “nifty” and memorable. “My brother said, ‘pick the first two words … Continued
Your video will help connect more people to our research, advocacy and support programs! What is your connection to ovarian cancer? What is your involvement, and why do you support OCRA? (note: please say O.C.R.A., rather than pronounce it as “okra”) What is your hope for the ovarian cancer community? Quick tips: Horizontal video is preferred. Please avoid backlighting and distracting … Continued
Flowers are blooming all around us, people are beginning to rediscover the things that matter most, and every day, OCRA grantees are making strides in understanding even more about ovarian cancer. Happy (almost!) May! RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE
National Superhero Day may bring to mind fictional characters swooping in to the save the day with feats of strength, but here at Ovarian Cancer Research Alliance, we celebrate the real-life OCRA Heroes who are doing their part to save lives in our community. The below heroes may not possess superhuman strength, powers of invisibility … Continued
“What do I want my legacy to be? How do I want to be remembered? What do I want to leave behind?” These are not the typical questions a marathon-running man in his early 30’s might ponder. Yet for Jonathan Sockolosky, this is what turned over and over in his mind following the death of … Continued
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