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Be #RareAware for Rare Ovarian Cancers

Be #RareAware for Rare Ovarian Cancers

Many people are surprised to learn that ovarian cancer is not one disease, but several distinct types and subtypes. Each type differs in who it typically affects, how it spreads, how it’s treated, and its prognosis. High grade serous ovarian cancer (HGSOC) is the most common, and is often the unspoken type we refer to … Continued

The Overview: May 2021

The Overview: May 2021

Before we head into the long holiday weekend, we wanted to share all the latest news and happenings. See below for updates in ovarian cancer research and advocacy, and discover new ways to get support and get involved. RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE

The Overview: April 2021

The Overview: April 2021

Flowers are blooming all around us, people are beginning to rediscover the things that matter most, and every day, OCRA grantees are making strides in understanding even more about ovarian cancer. Happy (almost!) May! RESEARCH ADVOCACY PATIENT SUPPORT & PROGRAMS EVENTS WAYS TO GIVE

OCRA Co-Signs Letter to President Biden Supporting HARPA

OCRA Co-Signs Letter to President Biden Supporting HARPA

On April 9, President Biden released his discretionary funding request for fiscal year 2022. Within the request, the President announced the creation of an agency that would take on high-risk, high-reward health research seeking to advance medical technologies. The agency is modeled after the renowned Defense Advanced Research Projects Agency (DARPA) which leverages public investments … Continued

Urgent: Tell Your U.S. Representative to Support a $10 Million Increase to OCRP

Urgent: Tell Your U.S. Representative to Support a $10 Million Increase to OCRP

On Friday, March 19, U.S. House Representatives Grace Meng (D-NY), Brian Fitzpatrick (R-PA), and Norma Torres (D-CA) released a bipartisan “Dear Colleague” letter urging the House Appropriations Defense Subcommittee to fund the Ovarian Cancer Research Program (OCRP) at $45 million for Fiscal Year 2022, an increase of $10 million over last year.  OCRP is the only federally-funded … Continued

The Overview: March 2021

The Overview: March 2021

The snow is (finally!) melting in the areas where many of us at OCRA work and live, the COVID vaccine is rolling out, and there is so much work being done to improve the lives of the ovarian cancer community … we can’t help but feel hopeful. Read on to discover the latest, and perhaps … Continued

Ovarian Cancer Advocates Unite for Spring Advocacy Day

Ovarian Cancer Advocates Unite for Spring Advocacy Day

OCRA’s Spring Advocacy Day, held March 8-9, looked a little bit different this year. For starters, we met online rather than in Washington D.C. But while the natural and obvious reaction to virtual life is to focus on what we’ve lost, we’re choosing to focus on all that we’ve gained from having to move our … Continued

OCRA Awards Prizes in Ovarian Cancer Research

OCRA Awards Prizes in Ovarian Cancer Research

Each year, OCRA honors individuals doing important and notable work in the ovarian cancer field with a research prize to help propel their future discoveries. Individuals are selected by members of OCRA’s Scientific Advisory Committee. Dr. Sarah Adams Awarded Liz Tilberis Research Prize for Outstanding Early Career Investigators The Liz Tilberis Research Prize is awarded … Continued

Advocacy in Action: A Year in Ovarian Cancer Policy Progress

Advocacy in Action: A Year in Ovarian Cancer Policy Progress

As we gear up for our first ever virtual Spring Advocacy Day — which will welcome more than 200 participants, double our usual crowd! — we couldn’t help but take a moment and look back. In a year when the world all but shut down, we accomplished quite a lot on a policy level, thanks … Continued

A False Alarm, and a Wake-Up Call to Fight Ovarian Cancer

A False Alarm, and a Wake-Up Call to Fight Ovarian Cancer

Imagine, if you will, a scene from yesteryear: rows of telephone operators sitting in front of giant switchboards, lights blinking on and off in seemingly random patterns, hands working quickly to plug and unplug wires in order to foster connections.  If you can picture that, you can begin to get a sense of the impact … Continued

Medicare Patients Pay High Cost for PARP Inhibitors

Medicare Patients Pay High Cost for PARP Inhibitors

PARP inhibitors have proven to be particularly valuable in improving progression-free survival for patients with certain types of ovarian cancer. But unfortunately, these gains come at a high financial cost to many patients, with a recent study showing that Medicare beneficiaries are the hardest hit. A team of researchers from The University of Alabama at … Continued

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