Those who have faced an ovarian or gynecologic cancer diagnosis have so much to offer to others going through a similar experience – be it support, tips or friendship. Inspired Advice is a blog series that tackles specific topics – from navigating a new diagnosis to adjusting diet and exercise – and shares advice and reflections from our OCRA Inspire Online Community. … Continued
Tracy lives in Alexandria, Virginia, and was diagnosed with stage IV germ cell ovarian cancer at age 27. What has been your frustration in having a rare form of ovarian cancer? I was diagnosed with stage 4 germ cell ovarian cancer eight years ago at age 27. I was devastated and felt like my entire … Continued
Ingrid lives in Denver, Colorado, and was diagnosed with low grade serous ovarian cancer in 2019. What has been your frustration in having a rare form of ovarian cancer? I was diagnosed in January of 2019 with low grade serous ovarian cancer. My doctor said she had to look on Facebook to learn about this … Continued
Sultry summer days can make anyone feel lazy and daydream of faraway places. But at OCRA, we’re working as hard as ever to fulfill our dream of a day when no one need fear an ovarian cancer diagnosis. Check out all that’s happening and discover ways that you can get involved. RESEARCH ADVOCACY PATIENT SUPPORT … Continued
Your Representative needs to hear from YOU. Please, urge your Representative to cosponsor Johanna’s Law today >> OCRA and the entire ovarian cancer community applaud the action taken on July 13, 2021 by Congresswoman Rosa DeLauro to reauthorize and expand Johanna’s Law. Since it was signed into law in 2007, Johanna’s Law has helped educate … Continued
No, ovarian cancer does not stop your period in and of itself. It is still possible to menstruate with the presence of the disease in your body. That being said, let’s answer this question by examining a host of other questions surrounding whether or not ovarian cancer stops one’s period. Can a missed period be … Continued
A study published in the American Journal of Obstetrics & Gynecology provides new insight into previously established research that oral contraceptive use is connected to lower ovarian cancer risk in the general population, by more closely examining the link among BRCA1 and BRCA2 mutation carriers. Scientists have long known that oral contraceptive use, particularly long-term … Continued
Janice lives in NW Pennsylvania, and was diagnosed in 1997, at age 34, with stage II retiform sertoli-leydig cell ovarian cancer with mucinous heterologous elements. What has been your frustration in having a rare form of ovarian cancer? My frustration was getting my rare cell type identified correctly, then finding out the protocol was experimental. Where … Continued
Sally lives in Mechanicsville, VA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? The most frustrating thing for me is that there is no standard of care and very little research. So little is known about granulosa cell tumor that one of … Continued
Anne lives in Morton, PA, and was diagnosed with small cell carcinoma of the ovary, hypercalcemic type. What has been your frustration in having a rare form of ovarian cancer? My frustration with having a rare form of ovarian cancer is the lack of doctors with knowledge and/or experience in treating women with SCCOHT. I … Continued
Karien lives in Kingaroy, Queensland, Australia and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? No doctors or surgeons knowing of my diagnosis, no research into it. When I go to a hospital or doctor (I live rural) they just send you home and … Continued
Christine lives in Atlanta, GA, and was diagnosed with a granulosa cell tumor. What has been your frustration in having a rare form of ovarian cancer? OB who first found the mass thought it was benign and didn’t run bloodwork that would have caught the GCT tumor prior to surgery, during which she cut the … Continued
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